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The Disability Archipelago is our name for the system of institutions intended for people deemed disabled, and its inhabitants count thousands of people. Our ethnographic research confirms that the institutions are isolated,... more
The Disability Archipelago is our name for the system of institutions intended for people deemed disabled, and its inhabitants count thousands of people. Our ethnographic research confirms that the institutions are isolated, difficult-to-reach places demarcated by rigid boundaries separating the inhabitants from the employees, regular life from official care strategies and maintenance, and people deemed disabled from the rest of us who have not been labeled as such. The Disability Archipelago is however not only a region of exclusion and extraction. It is also a space for problematization where congregate various publics composed of people who are impacted by the institutional regimes’ operations. These publics build on the understanding that the disability that condemns a person to life in the institutions is not the only possible version of disability. Apart from offering an ethnographic description of the world of institutions and an empirical-theoretical search for answers to the question of what socio-material conditions and interests allow its operations, this book also offers hope for change: a pragmatically founded vision of a disabled society as an open, changing community in which exclusion is replaced by a sense of shared affliction, and the tried and tested approaches of dealing with disability are replaced by an approach of creative unknowing.

Photo Petr Králík
Souostrovím postižení nazýváme systém ústavů pro lidi označené za postižené, jejichž obyvateli jsou v České republice tisíce lidí. Náš etnografický výzkum potvrzuje, že ústavy jsou izolovaná, obtížně dostupná místa, protkaná těžko... more
Souostrovím postižení nazýváme systém ústavů pro lidi označené za postižené, jejichž obyvateli jsou v České republice tisíce lidí. Náš etnografický výzkum potvrzuje, že ústavy jsou izolovaná, obtížně dostupná místa, protkaná těžko překročitelnými hranicemi oddělujícími obyvatele od zaměstnanců, obyčejný život od oficiálních strategií péče a údržby a lidi označené za postižené od nás ostatních, kteří za postižené označení nejsme. Souostroví postižení však není jen regionem vyloučení a vytěžování. Je zároveň prostorem problematizace, kde se shromažďují veřejnosti tvořené lidmi, kteří jsou působením ústavních režimů zasaženi. Tyto veřejnosti staví na poznání, že postižení, které člověka odsuzuje k životu v ústavech, není jedinou reálně uskutečnitelnou verzí postižení. Vedle etnografického popisu světa ústavů a empiricko-teoretického hledání odpovědi na otázku, jaká socio-materiální uspořádání a zájmy ho udržují při životě, tato kniha nabízí i naději na změnu: pragmaticky založenou vizi postižené veřejnosti coby proměnlivého otevřeného společenství, v němž je vyloučení nahrazeno sdílenou zasažeností a osvědčené způsoby zacházení s postižením kreativní nevědomostí.

Fotografie Petr Králík
Home is not only a concrete place and a complex system of rela- tions, but also an end-in-view that connects perceived shortcom- ings in the current versions of home with the desired goals and the means to achieve them. Our case study... more
Home is not only a concrete place and a complex system of rela- tions, but also an end-in-view that connects perceived shortcom- ings in the current versions of home with the desired goals and the means to achieve them. Our case study centres on a dining improvement project which strives to create home in residential institutions for people identified as disabled by serving a ‘home-like meal’. We describe three versions of home that are enacted in res- idential institutions – home as a commune, home as a private space and home as an intimate sphere – and document how they influence the serving of meals. We combine pragmatic theory of valuation with ethnographic research of home-making practices to assess the feasibility of these ends-in-view in relation to the hous- ing options available to the disabled-identified. We show that when the realization of the chosen goals proves unfeasible under present circumstances, the discrepancies between the desired and actual versions of home can be effaced through various re-contextualization strategies. Of the three versions of home encountered during our intervention/research, the home enacted as an intimate sphere is the one most firmly grounded in clients’ real wishes and needs, and therefore the one most favourable to positive change.
The residential Home F for people identified as ‘mentally impaired’ is a state within a state, with its own citizens, government, economy, and with its own rules, managerial procedures, and values. Like Goffman’s asylums (1961), it houses... more
The residential Home F for people identified as ‘mentally impaired’ is a state within a state, with its own citizens, government, economy, and with its own rules, managerial procedures, and values. Like Goffman’s asylums (1961), it houses big number of inmates, providing for most of their basic needs. Out of the many ‘things’ which need to be taken care of to allow the Home F to function, we focus on the ‘building’, understood not as a physical structure, but as an emerging socio-material network. While at the first glance the ‘building’ seems to be a single phenomenon shared by all, it changes with the practi- ces by which it is kept and used. We describe two sets of such maintenance activities – the practices of everyday life (de Certeau 1984), through which the so-called ‘service users’ appropriate their immediate living space, and the building maintenance, administering the whole institution. These two modes of using the Home F build on different strategies and experiences, acquired through different means. We ask how the maintenance/knowledge practices of the maintenance men equipped with the universal keys, CCTVs, and other high-tech devices relate to the experiences of the inhabitants eking out a living in a world of unalterable rules and barriers. Through exploring how practices typical of the two maintenance styles (Denise & Pontille 2017) influence, exploit and enable (or not) each other, we hope to shed some fresh empirical light on the tensions between ‘strategies of the strong’ and ‘tactics of the weak’ and between democratic and totalitarian institutions.
The main aim of the Biograf special issue on caring was to explore multiple relations between various caring practices and conceptualisations of care in moral philosophy and social sciences. The non-dualistic and agnostic spatial concept... more
The main aim of the Biograf special issue on caring was to explore multiple relations between various caring practices and conceptualisations of care in moral philosophy and social sciences. The non-dualistic and agnostic spatial concept of 'besides', developed in the work of Eve Kosofsky Sedgwick, has been used to open up the conceptual space for imagi ning different relations between practice and theory of care and their related normativities. The authors who have come together on the pages of this special issue use different theoretical frameworks-ranging from ethics of care to empirical ethics and maintenance studies-and focus on a wide spectrum of everyday and professional practices, e.g. social and health care services, public administration, or academic and research work. And yet, despite methodological and conceptual differences and occasional polemics, their contributions seem to have at least two important things in common. First, they are interested in what happens when the object-human or non-human-of caring practice or research is taken seriously 'on its own terms' and when it is diligently re-scribed with its benefit in mind. And second, they acknowledge the multiplicity of the objects, subjects, and strategies of caring. Thus, in the rendering of our authors, care comes out as both transformative and multiple, offering powerful tools for 'doing good', while not legislating in advance what that 'good' should be in various particular situations.
While many evaluations of the response from residential social services to the COVID-19 pandemic have pointed to high mortality rates and human rights violations, some have given a positive assessment of their performance. Whatever the... more
While many evaluations of the response from residential social services to the COVID-19 pandemic have pointed to high mortality rates and human rights violations, some have given a positive assessment of their performance. Whatever the verdict, it is a fact that the clients of residential social services were subject to stricter and longer lockdown measures than the rest of the population. Our ethnographic research describes the lockdown technologies used at Home F, a residential institution for people identified as disabled. Setting out from the assumption that freedom is not the antithesis of some united regulatory regime but is the result of the intersection of various repertoires and logics of influence, the research analyses the 'passages' that regulate relations between the clients and their surroundings before and during the pandemic. It shows that the regulatory mechanisms that were put in place to facilitate an effective pandemic response do not constitute a new apparatus but only an intensification of technologies already in place. With the aim of mitigating risk, they delegitimise the needs of clients, render relations dependent on obedience, and pass moralised judgements on behaviour. Such 'pedagogical arrangements' cause emotional suffering and do not leave much space for freedom. In the discussion in the article we link our findings to the current debates about the productivity of power and (post)critical pedagogy, concluding that while pedagogy necessarily accompanies the management of risks, a critical gesture that delegitimises the interests and opinions of the objects of pedagogy may not be the most appropriate pedagogical method available.
When we describe a thing, a person or a meeting, the simple question of what belongs in the picture becomes a methodological puzzle with serious practical and ethical consequences. A descriptive account touches the contours of what is... more
When we describe a thing, a person or a meeting, the simple question of what belongs in the picture becomes a methodological puzzle with serious practical and ethical consequences. A descriptive account touches the contours of what is being described, fluctuating between mere description and explanation and between paranoid and reparative writing. In our textual laboratory, we describe noise as a style of music and an example of cognitive multiplicity. Two accounts-of a concert and a noisy meeting-are put besides each other to explore methods which allow us to understand noise not as an annoying otherness, but as an accessible source of multiple meanings. We suggest that reparative strategies of description, adding texture to the surface rather than uncovering the social forces beneath, broaden the field of describable experience while also enabling us to see the exclusion of people considered too noisy as a process with real effects.
Critique is one of the social sciences’ most respectable tasks, especially when its aim is to emancipate people oppressed for their otherness. However, there is also a critique of critique as a disabling tool, replacing the obvious actors... more
Critique is one of the social sciences’ most respectable tasks, especially when its aim is to emancipate people oppressed for their otherness. However, there is also a critique of critique as a disabling tool, replacing the obvious actors revealed as ‘fictitious’ with synthetic objects that the critic herself deems more ‘factual’. This article understands the critical gesture as a pragmatic resource for re-organising the field of dis/abilities. In the first part of the article, we make three critical gestures together with José, a person identified as mentally ill. A paranoid vision of a secret conspiracy, a naturalising concept of disease, and the critique of stigma all seek to radically redraw the dis/ability coordinates, but their emancipatory potential is thwarted by the complex interconnectedness of their objects. José’s recovery thus ultimately hinges on a delicate balancing act combining critique and composing. In this sense, his effort resembles the careful treading of lay and professional critics in the last part of our text, in which we try to solve problems of living with dementia together with the Hanuš family. While the critical gesture has an essential role to play here as well, close ethnographic encounters are rather about jointly articulating the critical matters of care, wherein the problematic agencies of both obvious and not-so-obvious actors are acknowledged.
The text is an unpublished English translation of: Synek, M., and R. Carboch. 2014. "Profesní slepota a režimy spěchu: Podpora soběstačnosti při jídle v institucionální péči o lidi s mentálním znevýhodněním [Professional blindness and... more
The text is an unpublished English translation of: Synek, M., and R. Carboch. 2014. "Profesní slepota a režimy spěchu: Podpora soběstačnosti při jídle v institucionální péči o lidi s mentálním znevýhodněním [Professional blindness and regimes of haste: Support of self-sufficiency in eating in institutional care for people with mental disability]." Biograf 60: 59 paragraphs.

People living in “homes for people with health impairments” perform activities connected with the preparation, serving and eating of food at various degrees of self-sufficiency. Their autonomy in eating is influenced by their cognitive, sensory and physical abilities. But our observation of the assistance provided while eating also shows that self-sufficiency is negotiated – it is the result of an agreement between the client and the network of care, constituted not only by clients and carers, but also by technologies, rules, and the architecture of the surrounding “material” world. Self-sufficiency – in this case manifested as the ability to consume breakfast or lunch more or less independently – is not the client’s essential quality. It does not exist by itself, in a space formed solely by his or her “level of mental impairment”, but in a complex network of associations constituted by many human and non-human actors undergoing constant change. In the practice of institutional care for people with mental impairment we are frequently confronted with a situation characterized by a lack of time, individual approach, cooperation or the necessary resources indispensable for promoting self-sufficiency. We propose to describe this state of affairs – called “professional blindness” by the actors – not as an impairment of sight or judgment, but as an ordering of the network of care in which the space for promoting self-sufficiency is limited by accepted regimes of haste. The research described in the article focuses on several specific situations influenced by institutionalized regimes of haste and, together with the actors, seeks possibilities for their analysis and re-tuning.
On (in)coherence of caring: Multiple ontologies of life with dementia / Atolls of our coral reef inhabited by people living with dementia are linked up by partial connections, by hesitant assumptions, which on some of the atolls are... more
On (in)coherence of caring: Multiple ontologies of life with dementia / Atolls of our coral reef inhabited by people living with dementia are linked up by partial connections, by hesitant assumptions, which on some of the atolls are almost unconditionally relevant, while on others hold true only partially, and still on others are not valid at all. There isn't single dementia, single coral bleaching, nor single solution to these problems. All-encompassing unities – as syndrome of dementia or bleaching – are visible only when observing from nowhere, be it from the vantage point of Medicine or Oceanography. From the viewpoint of a single being, concrete community or centre of coherence they have only limited value. And yet, the individual versions of living with dementia are interconnected one with the other in such a way that it entitles us – under certain circumstances and in a certain sense – to talk about unity. Reality is " more than one – but less than many " (Mol 2002: 55; Law 2004: 59, 62, 74, 160). In the field of STS, researchers call this ontological nature of reality multiplicity. Our attempt at capturing multiplicity of living with dementia indicates that different patterns of coherence linked by partial connection do not have to be commensurable – they do not have to map onto a single Eu-clidean space. Our-self, casuistic, town and translation were drawn up by different researchers, in different sites and with different partners. We believe that acknowledging ontological specificity and idiosyncratic dignity of multiple partial patterns of living with dementia gives some hope – if not for cure, then at least for better living and dying in the times of trouble.
As a starting point for this article, the concept of diplomatic ethnography inspired by the work of Bruno Latour is presented as an ideal: a model for 'good anthropology', which truthfully follows members' actions and the associations... more
As a starting point for this article, the concept of diplomatic ethnography inspired by the work of Bruno Latour is presented as an ideal: a model for 'good anthropology', which truthfully follows members' actions and the associations they form with others, simultaneously respecting their values. The workability of this ideal is then ethnographically tested in a research setting where direct communication with actors about the results of the researcher's work is inescapable, while arriving at a common description of networks and values is difficult, as one group of actors routinely disqualifies members of another group by including them in the strongly naturalised category of 'people with mental impairment'. How to understand and interpret the life of Pete, a resident of a 'home for persons with health impairment', who strives to rein in his hearty appetite while those taking care of him describe him as a 'wicked child' whose actions reflect only his syndrome? On the basis of my negotiations about his case, I come to the conclusion that the project of diplomatic ethnography is viable, if the obduracy of the ordering arrangements is duly taken into account and values are honoured, and, while arguing with members is inevitable under given circumstances, it is potentially productive for envisioning change in existing modes of ordering.
Case management is generally seen as a way to provide efficient, cost-saving person-centred care for people with dementia by connecting together fragmented services, but the available evidence in favour of its merits is often considered... more
Case management is generally seen as a way to provide efficient, cost-saving person-centred care for people with dementia by connecting together fragmented services, but the available evidence in favour of its merits is often considered inconclusive, unclear and sketchy. This discussion paper investigates the evidence of the benefit of case management for people with dementia and explores the complexity of the concept and the experiences of its implementation. It offers a comprehensive framework for conceptualising various types of case management and asks the question: who can be a case manager? Building on examples from three European countries it addresses the problem of the expansion and adoption of the case management method. It compares the conventional model of diffusion of innovation with the ideas of interessement and co-constitution and envisions a successful model of case management as a fluid technology that is both friendly and flexible, allowing it to adapt to different settings and systems.
People living in „homes for mentally disabled” perform activities connected with preparation, serving and eating of food with various degree of self-sufficiency. Their autonomy in eating is influenced by the character of their disability,... more
People living in „homes for mentally disabled” perform activities connected with preparation, serving and eating of food with various degree of self-sufficiency. Their autonomy in eating is influenced by the character of their disability, as well as by associated sensory and physical impairments. But ob-servation of assistance with eating also shows that self-sufficiency is negotiat-ed – it is a result of an agreement between the client and the network of care, constituted not only by clients and carers, but also by technologies and rules, as well as by architectures of surrounding „material” world. Self-sufficiency – in our case manifested as ability to consume breakfast or lunch more or less independently – is not essential quality of the client. It does not exist by itself, in a space formed solely by „level of mental disability”, but in a complex network of associations, constituted by many human and non-human actors undergoing constant change. In the practice of institutional care for people with mental disability we are frequently confronted with situation characterized by lack of time, individual approach, cooperation or necessary resources indispensable for support of self-sufficiency. We propose to describe this state of affairs – called „profes-sional blindness” by the actors – not as an impairment of sight or judgment, but as an ordering of the network of care, in which space for support of self-sufficiency is limited by accepted regimes of haste. The research described in the article focuses on a few concrete situations influenced by institutionalized regimes of haste and together with actors seeks possibilities for their analysis and retuning.
Public debates of religious specialists could be used as a study example of relations between dogmatic and political aspects of religions. However, as the nature of scriptural sources is socioeconomic , the interactions must be primarily... more
Public debates of religious specialists could be used as a study example of relations between dogmatic and political aspects of religions. However, as the nature of scriptural sources is socioeconomic , the interactions must be primarily studied not on the religious debates per se, but rather on interpretation of such events in historic and dogmatic sources. The aim of the present work is to demonstrate this thesis on the case of Lhasa debate, which took place in the 8 th century Tibet and which has left enduring traces in the Tibetan religious consciousness. Based on methodological principles derived from Luther H. Martin's essay History, Historiography and Christian Origins (2000: 69–89) and analysis of dBa' bzhed (2000), one of the earliest " propaganda " texts written about Lhasa debate, of the present work seeks to define hypothetic Samye tradition, as a socio-religious group responsible for the creation and transmitting the chronicle. The tradition is then placed in the cultural and political context of its time and situated in the contemporary doctrinal spectrum. While this method seems to be appropriate for the study of the circles responsible for the creation of the text, about the event described we learn practically nothing. This conclusion seems to be confirmed by a short comparison with Dunhuang document Dunwu dasheng zhengli jue, offering an alternative view of the controversy. Thus, not the actions of the participants of the historic event, but the creative act of the Tibetan and Chinese chronicles authors' constitute the res gestae of the student of religion investigating Lhasa debate.
Life stories for human rights are lived and told by people with disabilities who have spent their lives in total institutions. By their retelling and by sharing uncertainties about how to re-tell them we want to broaden the space for... more
Life stories for human rights are lived and told by people with disabilities who have spent their lives in total institutions. By their retelling and by sharing uncertainties about how to re-tell them we want to broaden the space for shared memories and response-abilities.

Life stories for human rights (www.zivotnipribehy.com) are stories lived, told and spread by and with people with disabilities, who have spent big part of their lives in total institutions. Among the rights which are denied to people using the services of the total institutions, the right to own one’s life story and to share it with others plays an important role. Our project offers people with disabilities an opportunity to form a research group together with academics, students, journalists, musicians and artists and to introduce their experiences and standpoints into the expert and public discourses. The outputs of the joint research will be utilised for creating a monograph and academic articles, as well as academic courses and a a lifelong learning course for social workers. Readers and listeners of accessible materials about human rights issues – of the graphic novel, the podcasts and the web page – will enjoy the opportunity to read, hear and see life stories which have never before influenced the public debate. By their retelling, and by sharing uncertainties about how to re-tell them best, we want to broaden the space of shared memories, response-abilities and speculations. Together, we will create discursive and political spaces favourable for exploring better versions of cohabitation, as well as point to concrete ways of breaking the silence engulfing lives of people with disabilities.
Life stories for human rights are stories lived, told and spread by and with people with disabilities, who have spent big part of their lives in total institutions. The asylums, creating unsurmountable gap between their „clients“ and the... more
Life stories for human rights are stories lived, told and spread by and with people with disabilities, who have spent big part of their lives in total institutions. The asylums, creating unsurmountable gap between their „clients“ and the broader community, constitute one of major sources of discrimination and human rights abuse of the people identified as disabled. According to many eyewitness accounts and scholarly reports, the care repertoires, as they are performed in the institutions, are not favourable to living and thinking with people and things outside the asylums. Among the rights which are denied to people using the services of the total institutions, the right to own one‘s life story and to share it with other members of society plays an important role. The project Life stories for human rights enables people with disabilities to form a research group together with academics, students, journalists, musicians and artists and to introduce their experiences and standpoints into the expert and public discourses. Together we aim to add a missing link to the history of our country – the true „peoples‘ history“ of those gravely affected by the shortcomings or absence of individual and collective protection of the human rights.

As Dona Haraway reminds us, it is important what and whose stories tell stories (2019). No story stands by itself, all are born from comprehensive repertoires and practices of narrating, listening and re-telling. All are parts of other stories. Every story told by the members of our collective is different and will have different impact. But they have, or so it seems, at least one thing in common: they are born out of common human desire to speak, to be listened to, to break silences which hurt, and to inspire us to find new and better ways of relating.

The outputs of the joint research will be utilised for creating a monograph and academic articles, as well as academic courses and a a lifelong learning course for social workers. Readers and listeners of accessible materials about human rights issues – of the graphic novel, the podcasts and the web page – will enjoy the opportunity to read, hear and see life stories which have never before influenced the public debate. By their retelling, and by sharing uncertainties about how to re-tell them best, we want to broaden the space of shared memories, response-abilities and speculations. The re-telling of the life stories for human rights will create discursive and political spaces favourable for exploring better versions of cohabitation, as well as point to concrete ways of breaking the silence engulfing lives of people with disabilities.
Many citizens of the City identified as disabled still live in isolated residential institutions (in and outside the city) and there are still many others at risk of becoming inmates of the disability Gulag. Recently, for the first time,... more
Many citizens of the City identified as disabled still live in isolated residential institutions (in and outside the city) and there are still many others at risk of becoming inmates of the disability Gulag. Recently, for the first time, the City Council declared responsibility for the inhabitants that “that have been expelled” out of the urban life-as-usual. As the inclusive policies proposed by the ruling political coalition start to be translated into the concrete municipal strategies that concern everyday life of the city’s dwellers, doubts that could be easily understood as unwillingness, ignorance or even hostility emerge. On the other hand, clearly articulated policies and guidelines for inclusion often get into serious trouble as soon as they start to be tested in practice. We believe that one of the reasons for these mismatches is the fact that the values and aims framing the social services reform are isolated from other relevant frameworks and logics. By studying seemingly marginal and as yet neglected aspects of residential care – namely the tensions between care for residents, maintenance of their residences and upkeeping and development of the communities to which the people and the buildings belong – we want to explore a mode of thinking useful both for policy-makers and academics, namely looking at objects/subjects in ecological relationships. Using the tools of the STS inspired ethnographic research and empirical ethics, we want to find out how the “meaningful future for all” is produced and what spaces it inhabits.
In my presentation, I would like to reflect on some of the findings of a research and social innovation project whose aim was to improve serving of food in the residential institutions for people with the diagnosis of "mental impairment".... more
In my presentation, I would like to reflect on some of the findings of a research and social innovation project whose aim was to improve serving of food in the residential institutions for people with the diagnosis of "mental impairment". These so-called "homes for people with health impairments", much like Erving Goffman's infamous asylums (1968), house big number of people and through the highly-orchestrated social care practices provide for much of their basic needs. As the observation which I am going to present to you today pertain mainly to the question of how to deal with bad situation-and perhaps also how to find something good in them-it is important to say right at the start that our project was from its very beginning based on a shared critical stance, namely, that food, as it is cooked and served in such "homes", is not good for the boarders, even though it is prepared and offered while paying special attention to their needs. At least some of the main actors-that is some of the regional government's representatives, some of the managers of the residential institutions, and most importantly, some of the people cooking and serving meals-agreed that the food they make and distribute is in fact impaired, in the sense that it doesn't nourish-nutritionally and socially-its consumers. After introducing the field of the inquiry, I will present three different routes that elaboration of this initial critical stance can take in research and in practice, together with some of the effects that taking these routes had, or could have had, on the serving of meals at the "homes" and on the closely related subjects. I will suggest that being true to the empirical data is only one-if crucial-aspect of this problem and that being good might be equally important. Of course, such presentation is based on an idea that experiences from the field might by re-told in various ways, each having different narrative, results and impact. As Dona Haraway famously put it: "It matters what matters we use to think other matters with; it matters what stories we tell to tell other stories with" (Haraway 2016, 12). Thus, when presenting the different approaches taken to describe repertoires of meal provision in residential institutions, I will argue for a privileged position of one of these approaches, without trying to suggest that it is the only one possible. To get a glimpse of the kind of practices we tried to explore and influence through our research and social innovation project, consider the following observation from the Home Z, one of residential institutions for "persons with health impairments": The lobster salad (made of celery) is served as a "meal of choice". This is no doubt one of those new meals-a part of Mediterranean week?-that the head of meal services is so proud of. It soon becomes evident that the meal doesn't work as it's supposed to. Clients who have ordered the meal do not know what to do with it. [...] The problem is that the care workers on duty did not cut the long white baguette into pieces and the unknown object looks strange and
In my presentation, I would like to reflect on some of the findings of a research and social innovation project whose aim was to improve serving of food in the residential institutions for people with the diagnosis of "mental impairment".... more
In my presentation, I would like to reflect on some of the findings of a research and social innovation project whose aim was to improve serving of food in the residential institutions for people with the diagnosis of "mental impairment". These so-called "homes for people with health impairments", much like Erving Goffman's infamous asylums (1968), house big number of people and through the highly-orchestrated social care practices provide for much of their basic needs. As the observation which I am going to present to you today pertain mainly to the question of how to deal with bad situation-and perhaps also how to find something good in them-it is important to say right at the start that our project was from its very beginning based on a shared critical stance, namely, that food, as it is cooked and served in such "homes", is not good for the boarders, even though it is prepared and offered while paying special attention to their needs. At least some of the main actors-that is some of the regional government's representatives, some of the managers of the residential institutions, and most importantly, some of the people cooking and serving meals-agreed that the food they make and distribute is in fact impaired, in the sense that it doesn't nourish-nutritionally and socially-its consumers. After introducing the field of the inquiry, I will present three different routes that elaboration of this initial critical stance can take in research and in practice, together with some of the effects that taking these routes had, or could have had, on the serving of meals at the "homes" and on the closely related subjects. I will suggest that being true to the empirical data is only one-if crucial-aspect of this problem and that being good might be equally important. Of course, such presentation is based on an idea that experiences from the field might by re-told in various ways, each having different narrative, results and impact. As Dona Haraway famously put it: "It matters what matters we use to think other matters with; it matters what stories we tell to tell other stories with" (Haraway 2016, 12). Thus, when presenting the different approaches taken to describe repertoires of meal provision in residential institutions, I will argue for a privileged position of one of these approaches, without trying to suggest that it is the only one possible. To get a glimpse of the kind of practices we tried to explore and influence through our research and social innovation project, consider the following observation from the Home Z, one of residential institutions for "persons with health impairments": The lobster salad (made of celery) is served as a "meal of choice". This is no doubt one of those new meals-a part of Mediterranean week?-that the head of meal services is so proud of. It soon becomes evident that the meal doesn't work as it's supposed to. Clients who have ordered the meal do not know what to do with it. [...] The problem is that the care workers on duty did not cut the long white baguette into pieces and the unknown object looks strange and
Ve svém příspěvku chceme přednést, vysvětlit a diskutovat výzkum, na kterém začínáme pracovat. Náš přístup je inspirovaný ANT (teorií aktérů-sítí) a soudobými pracemi o etice a praktikách péče. Z tohoto přístupu vyplývá jak zvláštní,... more
Ve svém příspěvku chceme přednést, vysvětlit a diskutovat výzkum, na kterém začínáme pracovat. Náš přístup je inspirovaný ANT (teorií aktérů-sítí) a soudobými pracemi o etice a praktikách péče. Z tohoto přístupu vyplývá jak zvláštní, podvojný předmět bádání, tak obecnější přesah našeho výzkumu směrem k sociologické teorii.
Podoba pobytových služeb pro lidi označené za postižené se v Česku posledních let proměňuje. Velké ústavy nakonec přeci jen ustupují menším zařízením a domácí péči. Pořád ale zůstává hodně klientů v klasických ústavech. Z nich mnohé jsou umístěné v budovách, které jsou podobně křehké, zranitelné/zraňované, bezprizorné, na první pohled neužitečné a chabě propojené s okolím, jako jejich stávající obyvatelé: v bývalých zámcích, klášterech či historických vilách. Ty mají zvláštní historickou nebo kulturní hodnotu, zároveň však pro ně leckdy není vhodné využití a chátrají. Podobná směs zvláštních ohledů a zanedbávání je typická i pro vztah společnosti ke svým bývalým či ne-docela-platným členům – lidem, kteří se neobejdou bez zvláštní podpory a péče. Na jednu stranu prohlašujeme, že tito lidé by měli žít navzdory všem omezením co nejnormálnější životy, na druhou stranu jim k tomu nabízíme staré a těžko přizpůsobitelné budovy, hodně nepodobné těm, které běžně obýváme. V našich pobytových službách tak vzniká napětí mezi péčí o obyvatele (klienty) a péčí o jejich obydlí (budovy).
Normálně tuto dvojí starost pobytových služeb bereme jako dvě zcela různé a nesouvisející skupiny ohledů a požadavků. Obojí dokonce často stojí proti sobě: snaha chránit historické a chátrající budovy velí vracet těmto objektům původní podobu a zacházet s nimi šetrně; jsou-li v nich ale ubytováni staří/bezmocní/postižení, nutné úpravy a údržba vypadají zcela jinak (viz např. https://goo.gl/c8mF4L - “Život na zámku v 21. století. Pod vzácnými malbami mají postele děti i senioři“, Aktualne.cz, 17. 2. 2019). Přesto platí, že v některých důležitých ohledech zachraňují tyto staré objekty a v nich ubytovaní klienti jeden druhého. Potřebují se.
Ba víc, péče o budovy a péče o jejich obyvatele zde sice mohou být leckdy v napětí, avšak jindy může jít o praktické konání, které se vhodně doplňuje a má společný cíl. Účast na udržování domova je totiž jeho vytvářením, děláním. Dokonalé „hotelové“ či „nemocniční“ prostředí, které takovou účast nevyžaduje, je vlastně nenormální.
Naším výzkumným cílem je etnograficky popsat a analyzovat praxi údržby/péče (jak o budovy, tak o klienty) jako průsečík odlišných a často protichůdných, nikoli však nesouvisejících a zcela oddělených logik a hodnotových rámců. Zajímají nás přitom jak momenty konfliktu a napětí, tak možnosti toto napětí překračovat a zvládat produktivním a na obě strany smysluplným způsobem. V obecnějším smyslu půjde o příspěvek ke studiu materiálních a etických souvislostí péče a zároveň pokus o takovou sociologii, která se nezaměřuje na hladké, souvislé a dobře ohraničené předměty, ale na objekty vnitřně rozporné, rozeklané a napjaté.
Research Interests:
While engaging with people living with dementia – at home, in community services, in health care centre – we have encountered multiple ways of staying (together) with trouble. As a group of researchers with different backgrounds and... more
While engaging with people living with dementia – at home, in community services, in health care centre – we have encountered multiple ways of staying (together) with trouble. As a group of researchers with different backgrounds and working with different partners, we drew up patterns capturing the idiosyncratic dignity of multiple ways of living with dementia. In ensuing consultations, we have realized that while our texts acknowledged the complexity of caring efforts dedicated to maintaining the coherence of living and dying, the moments when actions and accounts of people identified as disabled were displaced into the realm of the untranslatable by reference to their cognitive disability, were not convincingly articulated. The on-going reflection has led us to question whether our interest in the locally built patterns of coherence, as well as the grounding of the research in ANT and material semiotics, hasn't given our narratives unduly non-problematic and happy impression. What was missing in the networks and panoramas described, and what was redundant? What's to be deconstructed and what's to be composed? And how and with whom do we find out?
We respond to this challenge by exploring how – in care and in STS research – is the silence surrounding cognitive dis/ability created, maintained and dispelled. In addition to this shift from composition towards critique, we want to make opposing move as well – we ask if it's possible to dispel the silence over the ruins of disabling discourses left after the attack of critique by re-describing critical matters of care.
In our study of social services for people with learning difficulties we focus on efforts aiming at their emancipation, i.e. at making them as independent on institutions and professionals as possible. Emphasis is being put on what is... more
In our study of social services for people with learning difficulties we focus on efforts aiming at their emancipation, i.e. at making them as independent on institutions and professionals as possible. Emphasis is being put on what is called “autonomous decision-making” about one’s life – what to do, what to buy, where to go and when. These decisions are to be based on authentic and unrestricted expression of clients’ desires and passions. Professionals are instructed and trained to move from making decisions on behalf of their (passive) clients to providing sensitive support for the activity of decision-making, performed preferably by the clients themselves.
But how to make clients to “decide for themselves”, co-creating a world for them, which would resemble the world of all other people? How to de-attach them from professional assistance? Sometimes it may seem that a simple redistribution of passivity and activity among professionals and their clients suffices. Even the official instructions and guides often imply that the less support from the others is offered, the more free and autonomous (“normal”) decision is made by the client – an ideal, desirable, but not always achievable situation. However, a closer look at the emancipating practices reveal that: (a) a lot of carefully orchestrated professional action, including enormous amount of paperwork, is mobilized to make one do things; (b) it is the quality of particular attachments – and not a reversal of activity/passivity – what makes a desirable difference. Misunderstandings about this may bring about perverted results.
Etnografické zkoumání světa lidí žijících s demencí – těch, kdo mají diagnózu demence, jakož i těch, kdo o ně pečují – nás přivedlo k formulování několika způsobů uspořádávání, jimiž naši komunikační partneři problém nazývaný demence... more
Etnografické zkoumání světa lidí žijících s demencí – těch, kdo mají diagnózu demence, jakož i těch, kdo o ně pečují – nás přivedlo k formulování několika způsobů uspořádávání, jimiž naši komunikační partneři problém nazývaný demence spoluutvářejí a řeší. Během výzkumu jsme potkávali lidi, jimž vynechává paměť, jejichž zvyky a náhled na svět se rychle a nežádoucím způsobem mění. Viděli jsme, jak jejich svět, jenž se stává-spolu-s-nimi, reaguje na tento společný problém různými způsoby. Někteří z nich mají někoho, kdo spolu s nimi skrze opakující se osmyslňující činnosti buduje pevné já-my. Snad bydlí v nějakém Městě, kde jejich svět drží pohromadě díky společně obývanému prostoru a společně sdílené odpovědnosti. Možná jsou instaurováni jako individuální případy, jako interdisciplinárně pojaté kazuistiky s otevřeným koncem. A možná potřebují – a nacházejí – překladatele, kteří jejich nesrozumitelnost přeloží světu a pomohou jim přijmout nesrozumitelnost světa. Tyto strategické vzory či malé narativy jsme spolu s komunikačními partnery přisoudili materiálně různorodým sítím sociálního, abychom vykreslili pestřejší, barvitější a snad i působivější obraz demence, než jaký zjednává dominantní medicínský diskurs, založený na statisticky podložených faktech a propůjčující tomuto "syndromu" pochmurnou aureolu společensky nebezpečné a ekonomicky náročné pandemie.
Již během sběru dat jsme si povšimli, že náš zájem o různé lokálně budované vzory soudržnosti, "udržující pohromadě život lidí žijících s demencí", jakož i teoretické zakotvení výzkumu v ANT a sémiotice materiality, propůjčilo našim příběhům – navzdory jejich nepřehlédnutelné tragičnosti – překvapivě šťastné vyznění. Momenty, kdy při společném starání se o obnovení soudržnosti něco překáželo, přebývalo či drhlo, kdy něco nefungovalo, nebo působilo bolest, v našem vyprávění buď chyběly, nebo bylo těžké dát jim náležité vyznění. Naši čtenáři a posluchačky si naší "nekritičnosti" brzy povšimli a začali se ptát, spolu s Michelem Foucaultem, co "nebezpečného" v sobě skrývají naše vzory uspořádávání, v čem spočívá "hlavní nebezpečí", na něž ukazují naše aktuální "každodenní eticko-politické volby"?
Na takto formulovanou výzvu nyní odpovídáme textem, v němž věnujeme zvláštní pozornost zatím jen tušeným, nedostatečně ohledaným problematickým bodům našeho vyprávění o životě lidí žijících s demencí. Bude nás zajímat, jak naši komunikační partneři ohraničují pole působnosti jednotlivých vzorů soudržnosti, když vylučují ty, kdo se do nich z nějakého důvodu nehodí. Budeme se ptát, proč a za jakých okolností se křehké a proměnlivé způsoby uspořádávání mění v dogmaticky formulovaný řád, nepřipouštějící odlišnost, výjimku či odpor. Pokusíme se odpovědět na otázku, jakou roli v takových chvílích hraje skutečnost, že někteří aktéři našich příběhů jsou považování za kognitivně nezpůsobilé a jejich výpovědi často odsouvány do oblasti nepřeložitelného. Chceme zjistit, jak se vytváří, šíří a rozptyluje ticho. Chceme se pokusit o etnografii kognitivní disability.
Odmítnutí "sociálna" coby svébytné substance vysvětlující existenci nezávislé domény "sociálních jevů" (Tarde, Latour) umožnilo návrat k empirickému zkoumání různorodých, nestálých a proměnlivých vazeb tvořících socio-materiální... more
Odmítnutí "sociálna" coby svébytné substance vysvětlující existenci nezávislé domény "sociálních jevů" (Tarde, Latour) umožnilo návrat k empirickému zkoumání různorodých, nestálých a proměnlivých vazeb tvořících socio-materiální uspořádání našeho světa. Badatelky a badatelé v oblasti STS, sémiotiky materiality a dalších oborů si začali klást otázku, z čeho jsou tvořeny a jak drží pohromadě heterogenní "objekty", jejichž bytí a působení bylo doposud objasňováno odkazem na nejrůznější transcendentální entity, jako jsou "společnost", "příroda", "psyché" či "morálka". Empiricko-filosofická a empiricko-ontologická zkoumání se zaměřila, mimo jiné, na vznik, trvání a rozpad vědeckých faktů (Latour, Woolgar), technických vynálezů (Callon, Law, Mol), diagnostických a léčebných postupů (Law, Singleton, Mol), či záležitostí tak všedních, jako je višňový moučník (Mol). Detailní etnografické studie nejen poukázaly na mnohočetnost různých způsobů uspořádávání (Law, Moser, Stöckelová) a odhalily různá "dobra" a různá "zla", která jsou v nich zjednávána (Latour, Pols), ale otevřela také cestu k jejich přehodnocení a reformulaci (Haraway, Latour). Soudržnost se ze samozřejmosti proměnila v předmět bádání a uspořádanost, ohraničenost a konzistence přestaly být nezpochybnitelnou hodnotou.
Náš výzkum obohacuje dosavadní sociálně-vědní zkoumání koherence o poznatky z oblasti péče o lidi žijící s demencí. Co a jak drží pohromadě život člověka, kterému přestává sloužit paměť? Jak se splétá soudržnost vnímání a jednání člověka s demencí ve vzájemné interakci s asistentem odlehčovacích služeb? Jak se v jednom malém Městě vzájemně drží pohromadě lidi žijící s demencí a ti, kteří o ně pečují? Jakou roli v tomhle držení pohromadě hraje rodina, místo, zvyk, zvíře-společník, halucinace, nebo dostupné služby a jejich (ne)koordinovanost? Jak by mohly k větší koherenci zdravotních a sociálních služeb napomoci metody cíleně podporující přehlednost, plánování a koordinaci? Jak se koordinace péče dělá pro různé cílové skupiny a v různých prostředích a jak koherentně se její metody přenášejí z místa na místo? A jak se k tomuhle všemu má soudržnost a srozumitelnost výzkumu, který se těmito věcmi zabývá?
Chystáme se mluvit o životě lidí s demencí a o praxi péče, přičemž poznatky našich komunikačních partnerů chceme obohatit teoretické rozpravy o koherenci. To znamená, jak píše Annemarie Mol, "tyto poznatky částečně oddělit od zvláštností jedinečného případu a formulovat je tak, aby inspirovaly analýzu jiných případů – případů odehrávajících se na jiných místech a za jiných okolností". Nevzdáváme se však ani naděje, že by naše "teorie" mohla zpříjemnit život lidí, o kterých a s nimiž píšeme.
Research Interests:
In residential institutions for people identified as dependent on other peoples' support, maintenance and care are inextricably interwoven. The asylums' buildings need constant upkeep and to get necessary resources, they also need people... more
In residential institutions for people identified as dependent on other peoples' support, maintenance and care are inextricably interwoven. The asylums' buildings need constant upkeep and to get necessary resources, they also need people to live in them, functioning thus as vacuous spaces drawing in inhabitants supplied by various disability labels. While providing shelter, they also complicate caring, as their "cultural" or "economic worth" prevents their transformation into places of dignified living. From a perspective of STS, this case presents twofold challenge. The first arises from difficulties to conceptualize failure. If we truthfully describe the existing modes of ordering maintenance and care, while respecting associated values, how to understand situations where one of these activities stand in a way of the other? Is strict differentiating between care and maintenance, based on valuing humans above non-humans, the only ethical solution? The second challenge consists of using alternative conceptualizations of maintenance and care to explore other, less radical versions of the controversy. If both processes are described as tinkering, which aspects of human/non-human relationships come into view? If both the buildings and people living in them are seen as fragile and mutable, could the edifices forming the disability Gulag (McBryde Johnson) become allies of disabled-identified? This paper combines strengths of diplomatic ethnography (Latour) and empirical ethics (Mol, Pols) to theorize maintenance (Cállen and Criado, Denis and Pontille) and care (Law, Mol, Moser) in situations of socio-material oppression and to envision more positive relationships between highly valued mutable buildings and disabled and fragile people.
Research Interests:
In the Czech Republic, the process of "transformation of social services" for "persons with disabilities" has been ongoing. Various efforts to re-organise cooking and dining form an integral part of quality improvement programmes, aimed... more
In the Czech Republic, the process of "transformation of social services" for "persons with disabilities" has been ongoing. Various efforts to re-organise cooking and dining form an integral part of quality improvement programmes, aimed at "deinstitutionalization" and "humanization" of residential care. This paper describes the role of the home metaphor in repertoires of dining in "care homes for persons with disabilities", contributing to the broader research of modes of ordering dis/ability.
The metaphor of "home" organises regimes of care around the idealised notions of communality and privacy. In institutions offering services to up to three hundred people, various activities and events of everyday life could be sanctioned by reference to benefits of homey atmosphere. In this context, the notion of ideal home for disabled-identified could pertain to collective living, favouring commune cause over privacy and individual differences. Against this, in the discourse of "transformation of the social services", the normalising faculty of "home" serves to enforce right to privacy, postulated on the basis of the equality and the normality principles. The ideal of small private "home" – embodied in the official limits to the number of inhabitants of the transformed institutions' units – structures both organization of the big care homes and architecture of the newly established households.
At the same time, the comparison with "the ways we do it at home" positions the practices of the care home in relation to private, locally situated lives of the carers and the cared-for. Apart of normative, legitimizing and positioning functions of the home metaphor in the institutionalized modes of ordering care, "home" – real and imagined – also serves as ideal site for engrossment, motivational displacement and reciprocity, described by the relational model of care. These motives are often evoked in the narratives of the carers, accounting for moments of experiencing closeness, attentiveness and safety based on appreciation of differences. However, in the eyes of the carers, the ethical ideals of relational care are often compromised by the very same modes of ordering care which claim to enhance the domesticity of the care settings.
While different and often incompatible conditions of possibility for a home-like living (including the making of a homey meal) are being postulated and strived for, the relation between privatizing and decentralisation of "homes for persons with disabilities" and enactment of the ethical ideal of relational care is by no means straightforward. With the principle of symmetry in mind, both competing sites – collective living and private household – must be described and analysed by the same means, while the oppressive nature of many institutional and home-like regimes of care must be counterbalanced by the researcher's heightened sensitivity to the needs and opinions of the disabled-identified. What, in their eyes, is "homey" about the "homey meals" cooked and served in various care settings? Could a "homey meal" be prepared in the not-so-homey kitchen? And could the home metaphor be used to organise care in such way that it serves the interest of both the carers and the cared-for?
WILLIAMS, Paul. TRIBE, Anthony. 2011. Buddhistické myšlení: Úplné uvedení do indické tradice. Trans. ZBAVITEL, Dušan. Praha: ExOriente. 301 stran. ISBN 978-80-904246-8-5. Orig. ed.: 2000. Buddhist Thought: A Complete Introduction to the... more
WILLIAMS, Paul. TRIBE, Anthony. 2011. Buddhistické myšlení: Úplné uvedení do indické tradice. Trans. ZBAVITEL, Dušan. Praha: ExOriente. 301 stran. ISBN 978-80-904246-8-5. Orig. ed.: 2000. Buddhist Thought: A Complete Introduction to the Indian Tradition. London and New York: Routledge.
Research Interests:
"Studia postižení" nabízejí multidisciplinární pohled na sociomateriální uspořádání a životní situace, v nichž se přesvědčení o tělesné či kognitivní jinakosti stává podnětem pro konstrukci "postižení", tedy relativně stálého, společensky... more
"Studia postižení" nabízejí multidisciplinární pohled na sociomateriální uspořádání a životní situace, v nichž se přesvědčení o tělesné či kognitivní jinakosti stává podnětem pro konstrukci "postižení", tedy relativně stálého, společensky legitimizovaného zjednávání některých lidí či typů zkušenosti jakožto nenormálních, méně hodnotných či nezpůsobilých. Autorky a autoři účastníci se této sekce vycházejí z de-naturalizovaného pohledu na ne/způsobilost, přičemž tento pojem "odkazuje ke způsobům, jakými jsou jedinci buď uznávání způsobilými, nebo jsou naopak této společenské legitimizace zbavováni a ,postihováni', na základě toho, zda (ne)naplňují společenské normy a očekávání ,normální' sociální ,funkčnosti'" (Kolářová 2012: 55). Zatímco však např. poststrukturalisticky orientované disability studies mnohdy objasňují postižení jako "mocný, normalizující diskurs, jehož původ je možné hledat v lékařských vědách či v širším spektru organizujících aktivit a zájmů souvisejících se zákonodárstvím a vládními orgány", předpokládajíce, že tento diskurs "utváří vnímání a myšlení lidí a koherentním způsobem se materializuje v praktikách, tělech a vztazích" (Moser 2005: 668), příspěvky zde představené se zabývají původem, sociomaterialitou, mechanismy zjednávání a působností mnohočetných diskursů postižení, jakož i jejich vzájemnými interakcemi s dalšími, více či méně zneschopňujícími či uschopňujícími diskursy. Kromě hledání mnohočetné "pravdy" postižení – to jest kromě popisu situovaných, heterogenních a proměnlivých socio-materiálních uspořádání, která stojí "za" fantasmaty nedostatečnosti, selhání a stigmatu – nabízejí také úvahy o dopadech různých "pravd" na životy těch, jichž se týkají především. Oscilují tak mezi kritickým, paranoidním čtením postižení a ne/způsobilosti, založeným na "hermeneutice podezřívavosti" a zaměřeným především na odhalování skrytých mechanismů útlaku a vylučování, a čtením reparativním, umožňujícím barvitější a tvořivější uchopení složitých vztahů vzájemné ne/závislosti a zne/užívání (Sedgwick 2003). Od základní otázky, jakými způsoby společnost znevýhodňuje osoby s "postižením", se tak posouvají ke zkoumání "rozličných způsobů, jimiž lidé a komunity čerpají posilu z objektů kultury, jejímž veřejně proklamovaným cílem často je žádnou posilu jim neposkytovat" (Sedgwick 2003: 151).
Joan Tronto a Berenice Fisher definují péči jako "aktivitu druhu […] zahrnující vše, co děláme pro udržování, pokračování a opravování ‚našeho světa', aby se nám v něm co nejlépe žilo. Tento svět zahrnuje naše těla, naše já a naše... more
Joan Tronto a Berenice Fisher definují péči jako "aktivitu druhu […] zahrnující vše, co děláme pro udržování, pokračování a opravování ‚našeho světa', aby se nám v něm co nejlépe žilo. Tento svět zahrnuje naše těla, naše já a naše prostředí, jež se všechny snažíme propojit v komplexní život-udržující síti." Toto vymezení otevírá prostor jak k posuzování přiměřenosti či správnosti jednání ve vztahu k předem daným normám (například k pěti dimenzím péče definovaným Joan Tronto), tak ke zkoumání péče jako praxe a k analýze její intra-normativity (jako kupříkladu v etnografických studiích Jeannette Pols nebo Annemarie Mol). Prostřednictvím tematické sekce věnované pečování bychom společně s účastnicemi a účastníky konference rádi prozkoumali, co to dělá s různými činnostmi-jako jsou třeba sociální práce, údržba budov, státní správa či práce pro akademii-když se ontologicky, deskriptivně a/nebo normativně rámují pečováním, tedy společným, vztahově utvářeným staráním se o lepší žití a umírání či vznikání a zanikání. Po představení čtyř příspěvků, z nichž každý jiným způsobem propojuje normativní přístup k pečování s empirickým zkoumáním činností, jejichž základem je starání se o někoho či o něco, chceme diskutovat o vztazích etiky péče a empirické etiky a ohledávat prostor, který v sociálních vědách obývají nebo by obývat mohly.
Do 30. 9. 2020 Prostřednictvím speciálního čísla časopisu Biograf bychom společně s přispěvatelkami a čtenáři rádi prozkoumali, co to dělá s různými činnostmi – jako jsou třeba sociální služby, zdravotnictví, zacházení s vodou a půdou... more
Do 30. 9. 2020

Prostřednictvím speciálního čísla časopisu Biograf bychom společně s přispěvatelkami a čtenáři rádi prozkoumali, co to dělá s různými činnostmi – jako jsou třeba sociální služby, zdravotnictví, zacházení s vodou a půdou či práce pro akademii – když se začnou ontologicky, deskriptivně a/nebo normativně rámovat pečováním, tedy společným, vztahově utvářeným staráním se o lepší žití a umírání či vznikání a zanikání.
Research Interests:
In the Czech Republic, thousands of men and women identified as mentally impaired live in large residential institutions, many of them housing more than a hundred inhabitants. As part of the highly-institutionalized care routines followed... more
In the Czech Republic, thousands of men and women identified as mentally impaired live in large residential institutions, many of them housing more than a hundred inhabitants. As part of the highly-institutionalized care routines followed by the staff of such “homes for people with health impairments”, they are served meals supposedly enhancing self-sufficiency and dignity and tailored to their “special needs”. However, despite the focus on individualisation and autonomy, the inhabitants of the asylums often get food that they cannot eat, or that they are forced to eat even if it does not suit them. The essays collected in this dissertation reflect upon six years of experience with a social invention project aimed at analysing and changing this situation. Through this reflection, the essays aim to enhance our understanding of the making of sociomaterially heterogeneous ‘objects’ – such as impaired food or mental impairment – in highly routinized everyday practices. Inspired by material semiotics, actor-network theory and disability studies, they investigate how different versions of mental impairment are enacted in repertoires of dining and how their encounters in the field of this activity disable/unable the various actors of residential care. Their main focus is on institutionalized care routines and their patterns, sociomateriality, force and durability, together with possibilities for formulating alternatives. Given the complex research environment riddled with numerous controversies regarding practices, ontologies and values, a praxiographic ethnography became the main research tool. Joint observations, interviews and discussions with communication partners were designed to comply with the key methodological rule of diplomatic ethnography: to “speak well to someone about something that really matters to that person”. This methodological dictum of Bruno Latour has been tested in a setting where some of the key actors not only meet considerable difficulties in voicing their matters of concern but are also disqualified as reliable witnesses by a strongly naturalised association with mental impairment. Staying true to the chosen approach meant paying heightened attention to the practical and embodied aspects of experience and sometimes also abandoning diplomatic negotiations for diplomatic arguing. It has been found that when the obduracy of the ordering arrangements is taken into account and values are honoured, the diplomatic argument might become a productive analytical tool. When discussing and doing “things that really matter”, the researchers and the communication partners discovered that among the many problems that are continually being addressed in residential institutions, a prominent role is played by “enhancing clients’ self-sufficiency when eating” and “professional blindness”, a characteristic of some of the staff members that allegedly hinders desirable interventions into the existing care routines. In our joint probing and intervening into “limited self-sufficiency” and “professional blindness”, neither of these qualities was found to be essential to the clients or the staff members. They appeared as heterogeneous quasi-objects/subjects, existing in a complex network of associations constituted by many human and non-human actors undergoing constant change. It has been found that “professional blindness” is not an impairment of sight or judgment, but an ordering of the network of care in which the space for promoting self-sufficiency is limited by existing regimes of haste, strongly influenced by the organizing object of mental impairment. In line with this insight, the main body of the research explores enactment of mental impairment in repertoires of dining, using diffraction of Annemarie Mol’s, Jeannette Pols’ and Ingunn Moser’s classical praxiographic studies as a means of analysis. In Hospital Z described in Mol’s book The Body Multiple, doctors, patients and various technical devices enact atherosclerosis, a disease to be cured. As almost everybody agrees that atherosclerosis is a useful object – in the sense that it enables treatment – its enactment could be described as the coordination and distribution of various versions of activities/objects. The object thus enacted is more than one and less than many. At Home Z in the Czech Republic, care workers, clients and various technologies and technical devices enact mental impairment, a disorder to be managed. The various different incarnations of the object in question – mental impairment enacted as a medical condition, as an object of care, as an opportunity for inclusion, as wickedness of the man-child, or as an object of critical attitude – are not made anew with the help of inscription devices, but are reiterated through many repertoires of care, including meal provision. Agreement on what mental impairment means is rare, and the utility of some of its versions is contested. Mental impairment is less than one and more than many, as none of its versions acquires coherence of a useful whole, and every practice of constructing it further multiplies incompatibilities. In addition to activities of coordination and distribution, which hold atherosclerosis together in Hospital Z, the infelicitous object of mental impairment is saved through thinking/acting from where one is (not), an activity which simultaneously relates to and denies multiplicity, often with disastrous effects on the intimately related subjects. But food, thanks to its fluid materiality, can become a space for enacting other ‘objects’ besides mental impairment. In efforts to change impaired meals into more a pleasurable experience, the home-like meal is supposed to infuse the residential institutions with home-like qualities. Staff members serving meals in “households”, organisational units built to provide domesticity, consider privacy and autonomy important characteristics of a home-like meal and strive to provide meals of the same qualities to the diners. At the same time, they consider this task impossible given the current orderings of the network of care. This discrepancy between the assessment of the current state of affairs and the desired ends in view is displaced by labelling the diners mentally impaired, in this specific case incapable of understanding and thus of enjoying the home-like meal. The text ends by retelling the story of one of the few former “home” residents. By leaving the institution but staying well-attached, he has enacted another version of home beyond the institutionalised discourses of communality and privacy, one conceptualized here as an intimate sphere. When evaluating the potential of different versions of home-like meal for driving reform, the conclusion is made that effective reform must be defined pragmatically, as one that cannot be pacified by the strategy of labelling. Like the repertoires of dining which it seeks to describe, this dissertation enacts mental impairment in a number of different and partially disparate ways. A methodological problem of re-telling accounts that nobody takes seriously, a rationale and an obstacle to heterogeneous socio-material practice of enhancing self-sufficiency, an unhappy object multiple held together by practices of adiaphora and by ghosts of the past, or a labelling strategy creating a semblance of home where there is none – all this is mental impairment as enacted by the individual chapters in this collection. If there is one single moral within this diversity, it is this: Mental impairment could be otherwise. Like many other biological entities aka scientific facts, it is not destiny. And the main objective of this collection is to open a path to this otherwise by deconstructing, as John Law puts it, the “commitment to visible singularity” that “not only hides the practice that enacts it, but also conceals the possibility that different constellations of practice and their hinterlands might make it possible to enact realities in different ways”.
Research Interests:
Early Mormon foundational narratives – those relating the visions of the religion’s founder Joseph Smith and origins of the Mormon basic text, the Book of Mormon – confuse modern reader accustomed to the clear division between fantasy and... more
Early Mormon foundational narratives – those relating the visions of the religion’s founder Joseph Smith and origins of the Mormon basic text, the Book of Mormon – confuse modern reader accustomed to the clear division between fantasy and reality with perplexing mixture of supernatural elements and common this-worldly facts. On one hand, these stories are populated by culturally postulated super-natural agents, like angels, godly personages and various magical instruments, and abound in descriptions of mystical visions, prophecies and divine truths, which could be substantiated only by faith. On the other hand, they intersperse these tales and base them upon narratives about fact-finding missions, rational analyses and experiments, concluded to obtain verifiable testimonies, evidence and proofs. The modern reader, faced with their intriguing double nature, seems to have only two options. Firstly, he could – if this option is available to him – take them for granted and embrace them without reservation on the basis of the supreme authority of their narrators and their protagonists. In such a case, their rational, empirical part does not matter much. Secondly, he could judge the evidence and logical arguments supplied by their authors by standards of secular modern epistemology. Looking at the Mormon early foundational narratives from this point of view, he could only deem their authors and propagators liars, or, more tolerantly, naive fools, whose thinking is hopelessly limited by medieval frame of mind and poor education. But none of these two stances – neither unconditional acceptance by faith, nor utter dismissal based on endogenous rational categories – constitute the right approach for a social scientist, seeking an accurate comprehension of religious belief.
Research Interests:
"Kdykoli dojde k sepsání příručky, [předání] se promění v pouhé zmocnění a praxe jde stranou. Copak bych se něčeho takového mohl dopustit pro vlastní prospěch? To budu raději žebrákem, co se kostí přivázanou na konci své hole strefuje do... more
"Kdykoli dojde k sepsání příručky, [předání] se promění v pouhé zmocnění a praxe jde stranou. Copak bych se něčeho takového mohl dopustit pro vlastní prospěch? To budu raději žebrákem, co se kostí přivázanou na konci své hole strefuje do psích čelistí!" (Phagpa Ö v Modrých análech). Instituci lungu, kterou Phagpa vnímá jako produkt profanace a zpovrchnění ústního způsobu předání nauky, způsobených proměnou orálního modu komunikace v modus literární, lze zároveň chápat jako začlenění psaného textu do orální kultury, jež hraje v předávání buddhistické nauky ústřední roli.
Research Interests:
Research Interests:
In the Czech Republic, thousands of men and women identified as mentally impaired live in large residential institutions, many of them housing more than a hundred inhabitants. As part of the highly- institutionalized care routines... more
In the Czech Republic, thousands of men and women identified as mentally impaired live in large residential institutions, many of them housing more than a hundred inhabitants. As part of the highly- institutionalized care routines followed by the staff of such “homes for people with health impairments”, they are served meals supposedly enhancing self-sufficiency and dignity and tailored to their “special needs”. However, despite the focus on individualisation and autonomy, the inhabitants of the asylums often get food that they cannot eat, or that they are forced to eat even if it does not suit them.
The essays collected in this dissertation reflect upon six years of experience with a social invention project aimed at analysing and changing this situation. Through this reflection, the essays aim to enhance our understanding of the making of sociomaterially heterogeneous ‘objects’ – such as impaired food or mental impairment – in highly routinized everyday practices. Inspired by material semiotics, actor-network theory and disability studies, they investigate how different versions of mental impairment are enacted in repertoires of dining and how their encounters in the field of this activity disable/unable the various actors of residential care. Their main focus is on institutionalized care routines and their patterns, sociomateriality, force and durability, together with possibilities for formulating alternatives.
Given the complex research environment riddled with numerous controversies regarding practices, ontologies and values, a praxiographic ethnography became the main research tool. Joint observations, interviews and discussions with communication partners were designed to comply with the key methodological rule of diplomatic ethnography: to “speak well to someone about something that really matters to that person”. This methodological dictum of Bruno Latour has been tested in a setting where some of the key actors not only meet considerable difficulties in voicing their matters of concern but are also disqualified as reliable witnesses by a strongly naturalised association with mental impairment. Staying true to the chosen approach meant paying heightened attention to the practical and embodied aspects of experience and sometimes also abandoning diplomatic negotiations for diplomatic arguing. It has been found that when the obduracy of the ordering arrangements is taken into account and values are honoured, the diplomatic argument might become a productive analytical tool.
When discussing and doing “things that really matter”, the researchers and the communication partners discovered that among the many problems that are continually being addressed in residential institutions, a prominent role is played by “enhancing clients’ self-sufficiency when eating” and “professional blindness”, a characteristic of some of the staff members that allegedly hinders desirable interventions into the existing care routines. In our joint probing and intervening into “limited self- sufficiency” and “professional blindness”, neither of these qualities was found to be essential to the clients or the staff members. They appeared as heterogeneous quasi-objects/subjects, existing in a complex network of associations constituted by many human and non-human actors undergoing constant change. It has been found that “professional blindness” is not an impairment of sight or judgment, but an ordering of the network of care in which the space for promoting self-sufficiency is limited by existing regimes of haste, strongly influenced by the organizing object of mental impairment.
In line with this insight, the main body of the research explores enactment of mental impairment in repertoires of dining, using diffraction of Annemarie Mol’s, Jeannette Pols’ and Ingunn Moser’s classical praxiographic studies as a means of analysis.
In Hospital Z described in Mol’s book The Body Multiple, doctors, patients and various technical devices enact atherosclerosis, a disease to be cured. As almost everybody agrees that atherosclerosis is a useful object – in the sense that it enables treatment – its enactment could be described as the coordination and distribution of various versions of activities/objects. The object thus enacted is more than one and less than many. At Home Z in the Czech Republic, care workers, clients and various technologies and technical devices enact mental impairment, a disorder to be managed. The various different incarnations of the object in question – mental impairment enacted as a medical condition, as an object of care, as an opportunity for inclusion, as wickedness of the man-child, or as an object of critical attitude – are not made anew with the help of inscription devices, but are reiterated through many repertoires of care, including meal provision. Agreement on what mental impairment means is rare, and the utility of some of its versions is contested. Mental impairment is less than one and more than many, as none of its versions acquires coherence of a useful whole, and every practice of constructing it further multiplies incompatibilities. In addition to activities of coordination and distribution, which hold atherosclerosis together in Hospital Z, the infelicitous object of mental impairment is saved through thinking/acting from where one is (not), an activity which simultaneously relates to and denies multiplicity, often with disastrous effects on the intimately related subjects.
But food, thanks to its fluid materiality, can become a space for enacting other ‘objects’ besides mental impairment. In efforts to change impaired meals into more a pleasurable experience, the home-like meal is supposed to infuse the residential institutions with home-like qualities. Staff members serving meals in “households”, organisational units built to provide domesticity, consider privacy and autonomy important characteristics of a home-like meal and strive to provide meals of the same qualities to the diners. At the same time, they consider this task impossible given the current orderings of the network of care. This discrepancy between the assessment of the current state of affairs and the desired ends in view is displaced by labelling the diners mentally impaired, in this specific case incapable of understanding and thus of enjoying the home-like meal.
The text ends by retelling the story of one of the few former “home” residents. By leaving the institution but staying well-attached, he has enacted another version of home beyond the institutionalised discourses of communality and privacy, one conceptualized here as an intimate sphere. When evaluating the potential of different versions of home-like meal for driving reform, the conclusion is made that effective reform must be defined pragmatically, as one that cannot be pacified by the strategy of labelling.
Like the repertoires of dining which it seeks to describe, this dissertation enacts mental impairment in a number of different and partially disparate ways. A methodological problem of re-telling accounts that nobody takes seriously, a rationale and an obstacle to heterogeneous socio-material practice of enhancing self-sufficiency, an unhappy object multiple held together by practices of adiaphora and by ghosts of the past, or a labelling strategy creating a semblance of home where there is none – all this is mental impairment as enacted by the individual chapters in this collection. If there is one single moral within this diversity, it is this: Mental impairment could be otherwise. Like many other biological entities aka scientific facts, it is not destiny. And the main objective of this collection is to open a path to this otherwise by deconstructing, as John Law puts it, the “commitment to visible singularity” that “not only hides the practice that enacts it, but also conceals the possibility that different constellations of practice and their hinterlands might make it possible to enact realities in different ways”.
Translating Tibetan Dharma into contemporary Tibeto-European Buddhism: texts, objects, communities and other ways of transmission / The transmission of Dharma in European and North American countries in the 21st Century could be viewed as... more
Translating Tibetan Dharma into contemporary Tibeto-European Buddhism: texts, objects, communities and other ways of transmission / The transmission of Dharma in European and North American countries in the 21st Century could be viewed as a translation of actors/networks facilitating its transmission in source communities by actors/networks localized in the new geographic and cultural space. If the basic metaphysical categories of classical translation theory – namely text, author and meaning – are bracketed out, the translation process could be defined as mobilisation of human and non-human actors, during which the actors are dislocated, transformed and embodied in new associations, and correspondence with the source text, equivalence of meaning, intelligibility for the target audience and other aspects of translation could be described as activities by which translators build the relevance of their interpretation of the source text. In my study I describe how such activities are shaped by members of Foundation for Preservation of Mahayana Tradition Translation Team and organizers of Dalai Lama’s commentary to the Atisa’s Lamp for the path to enlightenment, and on the basis of their analysis try to answer the question how a relevant translation of Tibetan dharma is being made into contemporary Tibeto-European Buddhism. My answer, offered to the reader in a form of a short manual of successful dharma translation, characterizes relevant translation as a text whose origin in the source text has been successfully negotiated by collective efforts aimed at building formal correspondence and equivalence of meaning, whose content has been successfully actualized through commentary, and which in the same time remains open enough to allow for further interpretation and individualization of the subject.
Research Interests:
Veřejné debaty náboženských specialistů mohou badatelům v oblasti náboženství posloužit jako model vzájemných vztahů dogmatiky a politiky. Vzhledem k socio-kulturní povaze pramenů, z nichž se o náboženských debatách dozvídáme, však musíme... more
Veřejné debaty náboženských specialistů mohou badatelům v oblasti náboženství posloužit jako model vzájemných vztahů dogmatiky a politiky. Vzhledem k socio-kulturní povaze pramenů, z nichž se o náboženských debatách dozvídáme, však musíme vzájemné ovlivňování světa religiozity a politiky primárně sledovat nikoli na náboženských debatách per se, ale spíše na způsobu, jakým je o nich v historiografických a naukových pramenech pojednáváno. Cílem práce je demonstrovat tuto tezi na případě lhaské debaty, k níž došlo na počátku 90. let 8. století n. l. v Tibetu a která se hluboce zapsala do povědomí následovníků tibetského buddhismu. Na základě metodologických východisek odvozených ze stati Luthera H. Martina „History, Historiography and Christian Origins“ a rozboru kroniky dBa’ bzhed, jednoho z nejstarších „propagandistických“ pramenů týkajících se debaty, je definována hypotetická samjäská tradice, jako socio-náboženské uskupení zodpovědné za vznik a tradování kroniky. Tato tradice je posléze umístěna do kulturního a politického kontextu své doby a její hypotetické doktrinální zaměření je vymezeno v rámci dobového doktrinálního spektra. Zatímco jakožto metoda zkoumání kruhů zodpovědných za vznik našeho pramene se tento postup jeví jako použitelný, o popisované události samotné se nedovídáme prakticky nic. To se zdá potvrzovat krátké srovnání s tunchuangským dokumentem Dunwu dasheng zhengli jue, nabízejícím alternativní pohled na lhaskou debatu. Res gestae religionisty zabývajícího se touto událostí proto nemůže být jednání jejích účastníků, ale tvůrčí čin autorů tibetských a čínských letopisů, k němuž došlo v jistých společenských, kulturních a politických poměrech.
How to study care practices empirically as normative practices? In this text, I describe three shifts in relation to normativity in empirical research, away from pre-scriptive nor- mativity that provides directives on what to do, as well... more
How to study care practices empirically as normative practices? In this text, I describe three shifts in relation to normativity in empirical research, away from pre-scriptive nor- mativity that provides directives on what to do, as well as from the idea that one can de- scribe the world as it is, thus separating norms from knowledge making. I locate the nor- mativity of research in the active work of ‘re-scribing’ one’s object of research. The first normative shift shows that values are not only part of human motivations and strivings, but are also embedded in socio-material objects such as technologies, social norms, re- search methods, and regulations. The second shift describes the intimate intertwinement of creating knowledge and normativity in research through the use of methods and con- cepts that include some things and leave others out. The third normative shift asks how the practices studied can benefit from diligent research work. If one re-scribes practices as attempts to do something good, how might this benefit care practices themselves? In trying to answer this question, I will depict the work of doing good through research as a complex practice in itself.
As a contribution to the field of valuation studies this article lays out a number of lessons that follow from an exploratory inquiry into 'good tomatoes'. We held interviews with tomato experts (developers, growers, sellers, processors,... more
As a contribution to the field of valuation studies this article lays out a number of lessons that follow from an exploratory inquiry into 'good tomatoes'. We held interviews with tomato experts (developers, growers, sellers, processors, professional cooks and so-called consumers) in the Netherlands and analysed the transcriptions carefully. Grouping our informants' concerns with tomatoes into clusters, we differentiate between five registers of valuing. These have to do with money, handling, historical time, what it is to be natural, and sensual appeal. There are tensions between and within these registers, that lead to clashes and compromises. Accordingly, valuing tomatoes does not fit into inclusive formal schemes. Neither is it simply a matter of making judgements. Our informants told us how they know whether a tomato is good, but also revealed what they do to make tomatoes good. Their valuing includes activities such as pruning tomato plants and preparing tomato dishes. But if such activities are meant to make tomatoes good, success is never guaranteed. This prompts us to import the notion of care. Care does not offer control, but involves sustained and respectful tinkering towards improvement. Which is not to say in the end the tomatoes our informants care for are good. In the end these tomatoes get eaten. And while eating performs tomatoes as 'good to eat', it also finishes them off. Valuing may lead on to destruction. An important lesson for valuation studies indeed.