Hospice and Palliative Care Social Work

Please note that I am not permitted to disseminate this test directly, no matter who requests it. This test is officially owned by UCLA and copyright protected and distributed through Behavioral Health Innovations through a licensing agreement with UCLA's Office of Intellectual Property.

Versions of the PCBD Checklist are currently available in both English (test and administration manual) and Spanish (test only).

For fee schedule and licensing agreement (available for online purchase) see https://www.reactionindex.com. The primary author can be contacted at clayne@nova.edu.

For a press release, see http://newsroom.ucla.edu/releases/new-ucla-university-of-texas-checklist-helps-identify-children-teens-with-bereavement-disorder

ABSTRACT: The Persistent Complex Bereavement Disorder (PCBD) Checklist—Youth Version is a psychological test for bereaved children and adolescents aged 8-18. It is designed to assess content domains corresponding to DSM-5 proposed Persistent Complex Bereavement Disorder symptom criteria, including Separation Distress, Reactive Distress, Existential/Identity Related Distress, and Distress over Circumstances of the Death. The PCBD Checklist replaces the (now-retired) early prototype measure, the UCLA Extended Grief Inventory (Layne, Savjak, Saltzman, & Pynoos, 2001) as a more rigorously constructed, developmentally attuned, psychometrically sound, and clinically useful instrument. The 39 PCBD Checklist items were written specifically to correspond with DSM-5 proposed PCBD diagnostic criteria. Consistent with best practice test construction procedures (Haynes, Richard, & Kubany, 1995), each PCBD test item has been extensively field-tested by a team of ten masters-level clinicians and clinical child psychologists under the clinical supervision of one of the test developers (Dr. Julie Kaplow). Iterative field-testing was conducted with 237 bereaved children and adolescents aged 8-18 in various field settings including bereavement camps, grief support facilities, community clinics, and school-based health clinics. The PCBD Checklist can be used for a range of clinical applications including risk screening, treatment triage, case conceptualization and treatment planning (including assessment-driven treatment tailoring), and treatment outcome evaluation. Because Persistent Complex Bereavement Disorder (PCBD) is a proposed research diagnosis located in the appendix of DSM-5, the PCBD Checklist can only be used to assign a provisional (unofficial) discrete (present/absent) PCBD diagnosis as well as yield continuous Criterion B and C subscale scores. Administration time for the PCBD Checklist is approximately 5-8 minutes, and scoring and interpretation take between 5-10 minutes. The PCBD Checklist is typically clinician-administered but can be adapted for self-report with older children and adolescents. Training in the administration, scoring, and interpretation of the PCBD Checklist can be provided in person or online by authorized trainers. Publication Date: Nov 2014.

Initial inquiries regarding the PCBD Checklist can be directed to Christopher Layne at Clayne@nova.edu.

Technical questions regarding copyright and licensing of the PCBD Checklist can be directed to Dr. Alan Steinberg at asteinberg@reactionindex.com. Be sure to also CC Christopher Layne at clayne@nova.edu .

Il numero monografico della rivista affronta il tema delle Cure Palliative, declinando la riflessione su diversi argomenti: dalla formazione agli aspetti etici. Vengono, inoltre, presentate sperimentazioni e ricerche realizzate in Italia, in questo ambito.

Pain and symptom control challenges are common in palliative care, and the search for other therapeutic strategies is ongoing. Unfortunately, patients and their caregivers are receiving little information or support from healthcare providers regarding the increasingly popular cannabinoid-based medicines (CBM). Clinicians, meanwhile, feel understandably perplexed by the discrepancy between the available evidence and the rapid interest in which patients and their families have demonstrated for CBM. There is an urgent need to address the many challenges that are delaying the appropriate integration of CBM into clinical practice, notwithstanding the obvious need for a solid general knowledge of pharmacology, mechanism of action and available clinical evidence supporting its use. The authors will address these challenges and provide practical recommendations regarding patient assessment for the use of CBM. The authors will also make suggestions regarding patient expectations in order to define clear objectives, review the necessary precautions prior to initiating treatment, aid in selecting the appropriate strain and route of administration as well as establishing proper titration and monitoring protocols. The authors will also discuss the lesser known but potentially therapeutic psychoactive effects of cannabis. As this class of therapeutic agents are likely to play a major role in palliative medicine in the near future, clinicians would benefit from familiarizing themselves with CBM and we can expect that patients and their caregivers will appreciate receiving support in their search for safe and effective therapeutic alternatives.

This examination will define and delineate the process of grief and bereavement as well as investigate grief through the lens of several seminal bereavement theorists. In addition, further exploration of research by several of the prominent modern theorists whose models are often used to assist with the grief process will be discussed, including controversies surrounding the models and grief therapy as a whole. Finally the discussion will revolve around determining the efficacy of each theory in correlation to how it may be effectively used with bereaved clients.

The aim of this article is to use data from Belgium to analyse distinctions between palliative sedation and euthanasia. There is a need to reduce confusion and improve communication related to patient management at end-of-life specifically regarding the rapidly expanding area of patient care that incorporates a spectrum of nuanced yet overlapping terms such as palliative care, sedation, palliative sedation, continued sedation, continued sedation until death, terminal sedation, voluntary euthanasia, and involuntary euthanasia. Some physicians and nurses mistakenly think that relieving suffering at the end of life by heavily sedating patients is a form of euthanasia, when indeed it is merely responding to the ordinary and proportionate needs of the patient. Concerns are raised about abuse in the form of deliberate involuntary euthanasia, obfuscation and disregard for the processes sustaining the management of refractory suffering at the end of life. Some suggestions designed to improve patient management and prevent potential abuse are offered.

This correlational quantitative research investigated to what extent, if any, a correlation between reported compassion satisfaction, burnout, and secondary traumatic stress of individual hospice employees and the number of patient deaths experienced in a 14-day period. The theoretical framework included the Job Demands-Resource Model. Data were collected via SurveyMonkey® from 117 hospice employees (registered nurses, licensed practical nurses, nursing assistants or certified nursing assistants, social workers, and chaplains) from for-profit and not-for-profit hospice companies across the United States. Spearman Correlation were computed to test the hypotheses. The results of the bivariate correlation indicated the number of deaths individual hospice employees experience have no significant correlation on compassion satisfaction (r = -0.124, p >.05) and secondary traumatic stress (r = -0.005, p >.05), but has a positive and significant correlation on burnout (r = 0.261, p < .005). Overall, the results indicate that as deaths experienced increased, burnout tends to increase. The lack of correlation between number of deaths experienced and levels of compassion satisfaction and levels of secondary traumatic stress suggests hospice employees generally acquire satisfaction from their work and have natural mechanisms to avoid reliving the patient’s life experiences. These findings have implications for future research on the importance of understanding how the number of patient deaths relates to the hospice employees’ psychological impact, to maintain hospice employees, and ensure quality of care for years to come.
Keywords: Hospice employees, Job Demands-Resource Model, compassion satisfaction, burnout, secondary traumatic stress, and deaths experienced.

In the context of palliative care, characterized by a multi-professional approach that deals with the overall care of the sick person and his family, the assessment of Social Work is part of a broader assessment of needs, aimed at activating interventions aim to encourage continuity of care and collaboration between the different services of the network. The research realized in a Health Agency of the Veneto Region, in the period September 2012-February 2014, was used to know and develop the social skills in the field of protected discharge and draw up a communication protocol, which was adopted by the entire professional community of social workers, to taking charge of the patient with complex chronic and palliative care program. The results showed that a shared mode and participatory evaluation of the need may support home care, reduce residential projects and facilitate the proper use of places in hospice. Introduzione: servizio sociale e cure palliative I cambiamenti socio-demografici e le connesse variazioni dei bisogni chiamano, sempre più spesso, il servizio sociale ad intervenire nei contesti sanitari. L'integrazione socio-sanitaria, intesa non solo come collaborazione tra due comparti ma focalizzata a considerare la persona come un unicum (Bissolo e Fazzi, 2005), da vari decenni ormai, è uno degli obiettivi prioritari del sistema dei servizi alla persona. La necessità di integrare gli aspetti sanitari della malattia con quelli so-ciali fa sì che il professionista assistente sociale entri a far parte delle équipe Copyright © FrancoAngeli N.B: Copia ad uso personale. È vietata la riproduzione (totale o parziale) dell'opera con qualsiasi mezzo effettuata e la sua messa a disposizione di terzi, sia in forma gratuita sia a pagamento.

The acronym LGBT refers to groups of people who are lesbian, gay, bisexual and transgender, groups historically marginalized, mistreated, ignored by society and the health care delivery systems, including hospice and palliative care services. The purpose of this literature review was to explore the characteristics, history, health and health care disparities, social support systems and legal issues of LGBT persons with a particular focus on older adults, end-of-life care, and ways in which hospice and palliative care organizations can better meet their needs. Despite the fact that sound enquiry is needed to improve health-related outcomes, what little research has been done with LGBT adults in general and, specifically, with older LGBT adults, has focused mainly on HIV/AIDS and other sexually transmitted diseases. As a social minority, LGBT persons are more likely to experience economic insecurity, lack health insurance , experience invisibility, and be victimized and mistreated. This is especially true of older LGBT adults who grew up in a less tolerant era when sexual minorities were criminalized and stigmatized as pathological, sinful, and immoral. Their minority status has led to health issues and health care disparities, and requires health professionals to consider systems in a way that redefines family, addresses legal concerns, and responds with options of care unlike those of their heterosexual counterparts. With recent changes in societal attitudes and some progress in addressing legal concerns, hospice and palliative care organizations now have a unique opportunity to lead the health care community by pioneering culturally sensitive and appropriate methods to better serve this population.

Caregiver suffering and burnout amongst professionals in palliative care settings are increasingly discussed phenomena in the media and the specialized journals alike. However, we still lack anthropological understandings of the ways this distress is related to the dynamics, practices and representations of palliative care institutions. This article, based on a 2011-2012 fieldwork conducted in one of the 27 independent hospices of the province of Quebec, aims to contribute to the question in showing how the ways the staff conceive their roles in caring for the dying. We aim to explore how the suffering is related to the nature of these roles and to the institutional framework, the Good Death. Within the institution that was the focus of this research, caregivers must carry out the double-task of protecting themselves psychologically (finding the appropriate distance) and negotiating the institutional and ideological pressure to embody the palliative mission. If the non-monetary rewards or sources of satisfaction related to the exercise of the profession are not sufficient – or simply missing for logistical reasons, temporal reasons or others – it is very likely that end-of-life work will become an unbearable burden for certain caregivers and will lead to resignations.

This congress will enable doctors and nurses, pharmacists, health professionals, spiritual supporters and social workers to share their experiences and expertise in an international platform and will shed light on the developments in this area. We predict that this congress will bring together an average of 500 specialists with the Support of Republic of Turkey Ministry of Health, the congress will be organized by Bezmialem Vakıf University, Istanbul Provincial Health Directorate, General Secretariat of Physician Rights Association.

Background: The population of elderly is on the rise worldwide. The medical care of this group represent a significant unmet health need and thus utilization of health facilities is therefore very important.Objective: To determine the healthcare services experience of elderly in Edo state, Nigeria.Methods: This descriptive cross-sectional survey was conducted in Eyaen community in Uhunwonde Local Government Area of Edo state, Nigeria. The study population was 400 elderly recruited using multistage sampling technique. The data collection tool utilized was an interviewer-administered questionnaire. Results: There were more males (56.5%) than females (43.5%) giving a male: female ratio of 1.3:1, with a mean age of 71.3 years. Majority 95.3% had visited health facility, nine-tenth (90.3%) fall sick often but only 67.8% visit health facility when they are seriously sick. Waiting time was considered long and very long among 70.5% and 9.5% of respondents respectively. Sixty-six percent of the respondents attested that the number of doctors in health facility was insufficient and 72% felt that the consulted doctors were friendly. Effective communication with health workers was reported by 77% of the respondents. Appointment booking was easy for 51.3% of the respondents. The association of level of education and ease of appointment booking was statistically significant. The cost of health service received was deemed too expensive by 53% of the respondents. Musculoskeletal pain (40.5%) and malaria (29.0%) were the most common illnesses reported by the respondents. Conclusion: Data from this study revealed that most elderly had unpleasant health service experience as evidenced by long waiting time, insufficient number of doctors in health facilities, and expensive health services. Modeling healthcare delivery for elderly, devoid of these impediments is an obvious necessity.

In the world, Palliative and Hospice Care (PHC) are approaches conceived to improve the quality of life of patients and their families facing the problem associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems; physical; psychosocial; spiritual. In Ukraine, the first efforts to develop PHC already have been made 20 years ago. In 2006-2017 the breakthrough was made. In our research, we have analyzed the activities of both governmental bodies and non-governmental organizations in the field of development of PHC. Our main conclusions are that PHC in Ukraine is just starting to develop; the philosophy of PHC just forming. Organizations which develop PHC are very young. As Ukraine is the former Soviet country, paternalistic traditions are very alive here so that many directives, orders and other documents go from above (from Ministry of Health mostly) and t...

Within the health continuum, there are three main levels: primary health care, secondary health care and then tertiary health care. For years primary and secondary health care has permeated across the globe and particularly in Africa. However, tertiary health care which includes palliative care, hospice and end of life care have been least exploited. Given that Africa suffers a double burden of disease with non-communicable diseases expected to spike in the sub-region by 2030, this study seeks to explore palliative care in Africa. It highlights on specifically, the utilization of palliative care in Africa, the relevance and need for palliative care, the barriers as well as other concomitant factors. The study concludes that health care providers and professionals should be provided with comprehensive education and training about palliative care, its principles and practice. Additionally, there must be some legislation and national policies to facilitate palliative care in Africa. The paper recommends that palliative care should be captured in the educational curriculum of health care providers.

Thanatopedagogy, as a sub-discipline has been newly observed in Polish pedagogical thought, mainly due to the popularisation of the hospice movement, as well as the involvement of the students and researchers. The learning contents, which are related to death education, according to the obvious reasons, are the cause of certain anxiety. The issues are conveyed within a more or less broad context during the psychology classes, philosophy, ethics, theology, anthropology, sociology, culture knowledge or the specialistic pedagogy and geragogy. Therefore, there is a necessity of stating the position of thanatopedagogy and the scope of its contents in the educational programmes for pedagogues and teachers in Poland. Since the foreign specialists' achievements in the field are already known, here comes the possibility of an exchange of experiences and patterning oneself upon the actual solutions.

Exploring a number of key temporal distinctions which I believe are relevant for all those involved in palliative or 'end of life' care for those Dying through terminal illness, and some of the temporal dimensions of Dying itself - understood as an existential as well as biologicial Death Process. It is argued that this process cannot itself be temporally confined to the last hours, days or weeks before Death as the dominant 'cancer paradigm' or end-of-life care tends to suggest.

In the world, Palliative and Hospice Care (PHC) are approaches conceived to improve the quality of life of patients and their families facing the problem associated with life-threatening illness, through the
prevention and relief of suffering by means of early identification and
impeccable assessment and treatment of pain and other problems; physical; psychosocial; spiritual. In Ukraine, the first efforts to develop PHC
already have been made 20 years ago. In 2006-2017 the breakthrough was made. In our research, we have analyzed the activities of both governmental bodies and non-governmental organizations in the field of
development of PHC. Our main conclusions are that PHC in Ukraine
is just starting to develop; the philosophy of PHC just forming. Organizations which develop PHC are very young. As Ukraine is the former
Soviet country, paternalistic traditions are very alive here so that many
directives, orders and other documents go from above (from Ministry
of Health mostly) and the grass-roots are rather rare. As many organizations have not yet undergone training yet, the main directions of the
work to develop PHC are advocacy; improvement of the legislation;
training for civic leaders, specialists and other stake-holders.

November is National Family Caregivers Month - Take Care to Give Care
This articles relates to caring for my late husband, David Hernandez, who was a Senior Grants Officer at Bronx Community College. Missing his compassionate presence, and grateful for having had his love and support for those wonderful years of our marriage.

ABSTRACT (Please note that I am not permitted to disseminate this test directly, no matter who requests it. This test is officially owned by UCLA, and copyright protected and distributed through UCLA&amp;amp;#39;s Office of Intellectual Property. Please see below for detailed information on how to obtain the measure.) The PCBD Checklist is a psychological test for bereaved children and adolescents aged 8-18. It is designed to assess content domains corresponding to DSM-5 proposed Persistent Complex Bereavement Disorder symptom criteria, including Separation Distress, Reactive Distress, Existential/Identity Related Distress, and Distress over Circumstances of the Death. The PCBD Checklist replaces the (now-retired) early prototype measure, the UCLA Extended Grief Inventory (Layne, Savjak, Saltzman, &amp;amp;amp; Pynoos, 2001) as a more rigorously constructed, developmentally attuned, psychometrically sound, and clinically useful instrument. The 39 PCBD Checklist items were written specifically to correspond with DSM-5 proposed PCBD diagnostic criteria. Consistent with best practice test construction procedures (Haynes, Richard, &amp;amp;amp; Kubany, 1995), each PCBD test item has been extensively field-tested by a team of ten masters-level clinicians and clinical child psychologists under the clinical supervision of one of the test developers (Dr. Julie Kaplow). Iterative field-testing was conducted with 237 bereaved children and adolescents aged 8-18 in various field settings including bereavement camps, grief support facilities, community clinics, and school-based health clinics. The PCBD Checklist can be used for a range of clinical applications including risk screening, treatment triage, case conceptualization and treatment planning (including assessment-driven treatment tailoring), and treatment outcome evaluation. Because Persistent Complex Bereavement Disorder (PCBD) is a proposed research diagnosis located in the appendix of DSM-5, the PCBD Checklist can only be used to assign a provisional (unofficial) discrete (present/absent) PCBD diagnosis as well as yield continuous Criterion B and C subscale scores. Administration time for the PCBD Checklist is approximately 5-8 minutes, and scoring and interpretation take between 5-10 minutes. The PCBD Checklist is typically clinician-administered but can be adapted for self-report with older children and adolescents. Training in the administration, scoring, and interpretation of the PCBD Checklist can be provided in person or online by authorized trainers. Publication Date: Nov 2014. Initial inquiries regarding the PCBD Checklist can be directed to Christopher Layne at CMLayne@Mednet.ucla.edu. Technical questions regarding copyright and licensing of the PCBD Checklist can be directed to the UCLA copyright officer: Katherine Fibiger, J.D., LLM kfibiger@research.ucla.edu (Telephone: 310-794-0205). Be sure to also CC Christopher Layne at CMLayne@mednet.ucla.edu. Citation: Layne, C.M., Kaplow, J.B., &amp;amp;amp; Pynoos, R.S. (2014). Test Administration Manual for the Persistent Complex Bereavement Disorder Checklist-Youth Version. Los Angeles, CA: University of California, Los Angeles Office of Intellectual Property. Persistent Complex Bereavement Disorder (PCBD) Checklist - Youth Version. Available from: https://www.researchgate.net/publication/273460715_Persistent_Complex_Bereavement_Disorder_%28PCBD%29_Checklist_-_Youth_Version.

In the context of palliative care, characterized by a multi-professional approach that deals with the overall care of the sick person and his family, the assessment of Social Work is part of a broader assessment of needs, aimed at activating interventions aim to encourage continuity of care and collaboration between the different services of the network. The research realized in a Health Agency of the Veneto Region, in the period September 2012 - February 2014, was used to know and develop the social skills in the field of protected discharge and draw up a communication protocol, which was adopted by the entire professional community of social workers, to taking charge of the patient with complex chronic and palliative care program. The results showed that a shared mode and participatory evaluation of the need may support home care, reduce residential projects and facilitate the proper use of places in hospice.

This Malayalam article analyses the ruling of the Indian Supreme Court permitting passive euthanasia - the withdrawal of artificial life support systems when there is no hope of life in its absence. The implications of this ruling are analyzed examining various possible scenarios and a note of caution is sounded regarding the possible misuse of the provisions of this judgement. The article concludes by stressing the right to a healthy life, and also the importance of palliative care.

Praca profesjonalistów i amatorów wolontariuszy z pacjentami placówek medycznych i opiekuńczych przeplata się z aktywnością socjalną - przede wszystkim w środowiskach nędzy materialnej i edukacyjnej. Dotyczy osób w różnym wieku i jest realizowana na zasadzie umowy społecznej nie tylko celem poprawiania jakości życia, ale również intensyfikowania rozwoju cywilizacyjnego społeczeństwa. Od wielu lat w tym nurcie aktywności powstają nieformalne zespoły, organizacje i instytucje doktorów klaunów. Autor przedstawia założenia i elementy projektu wolontaryjnego realizowanego pod auspicjami Światowej Organizacji Zdrowia w peruwiańskim Iquitos. W projekcie biorą udział m.in. doktorzy klauni Patcha Adamsa.

Chorzy i umierający to charakterystyczni Obcy, obecni w każdym społeczeństwie, bez względu na długość i szerokość geograficzną. Wprawdzie zarówno chorowanie, jak i umieranie stanowią nieodłączny element ludzkiego bytu, jednak ze względu na towarzyszące im emocje i konotacje kulturowe są często wypierane ze świadomości, ukrywane w zaciszach sal szpitali, hospicjów i innych placówek opiekuńczych. Autor opisuje projekty edukacyjne i socjalne realizowane z inspiracji Patcha Adamsa na zasadzie dzielenia się miłością z chorymi i umierającymi w niekiedy drastycznych okolicznościach. Patch Adams organizuje wiele misji dla wolontariuszy-klaunów, w ramach których walka z wykluczeniem, dyskryminacją i osamotnieniem chorych i umierających (zwykle też ubogich), to nieustanny proces przełamywania stereotypów dotyczących ich Obcości w środowisku.