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Personalisation and the Co-operative tradition
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Personalisation and the Co-operative
tradition
Jenny Fisher1, Sue Baines2, Mary Rayner3 and Mike Bull4
Work in progress – not to be quoted without permission
Abstract
The agenda for „personalisation‟ is driving huge changes in public services for adult
social care and health services in the UK, with profound implications for service
users, commissioners, and providers. This paper is about the intersection of
personalisation and the cooperative tradition, with its emphasis on mutual aid and
value-led enterprise.
Personalised services imply fewer block contracts between state agencies and
providers, and more individual service users selecting and purchasing their own
services either directly or through intermediaries. Funding systems designed to
enable self directed support, in the form of direct payments and individual budgets,
are established in social care provided by local authorities.
They are novel in the National Health Service, where a pilot programme for personal
health budgets was launched last year. According to the Department of Health there
are new opportunities for innovative providers from any sector to offer the diversity of
choice required by personalisation. The promises of personalised services include
more choice, and solutions tailored for individuals but critics argue that the most
disadvantaged are least able to exercise choice.
Versions of personalisation encompass market models with service-users as
customers, as well as more radical change in which they become co-designers and
co-producers alongside professionals. For the former the key is a cash nexus, while
progress towards the later involves finding new collaborative ways of working,
sometimes breaking down distinctions between user, provider, carer, professional,
employee, employer, and commissioner.
The paper analyses these dynamics from the perspective of providers defined by
co-operative values and principles, including employee owned co-operatives and
new enterprises in which service recipients retain individual control over their care
but share organisational burdens.
1
Senior Lecturer in Social Change, Manchester Metropolitan University
Reader in Social Policy, Manchester Metropolitan University
3
Policy and Research Officer, Co-operatives UK
4
Research Fellow in Social Enterprise, Manchester Metropolitan University
2
Introduction
Personalisation of social care and health is intended to ensure that that people can
be responsible for themselves and make their own decisions about the services they
need. It is an international phenomenon that includes moves towards greater selfdirected support and individualised funding. In this paper we are concerned with the
agenda for personalisation in England. Personalisation implies less in-house
provision, fewer block contracts between state agencies and providers, and more
individual service users selecting and purchasing their own services either directly or
through intermediaries. There are profound implications for service users,
commissioners, and providers. Notions of independence, choice and control at the
heart of personalisation are said to demand a shift of power to the service user.
There is evidence that finding new collaborative ways of working is essential to
making progress in personalisation within a context of public sector funding cuts and
an ageing population (Carr, 2008; Dickinson and Glasby, 2010).
Co-operatives are high on the political agenda and there has been growing interest
across the political spectrum in the UK in how co-operatives might re-energise
public services, in particular staff engagement, through forming employee owned
co-operatives. In a recent document entitled „Building the Big Society‟ the new
Coalition government states, "we will support the creation and expansion of mutuals,
cooperatives, charities and social enterprises, and support these groups to have
much greater involvement in the running of public services" (Cabinet Office, 2010).
This paper is about the intersection of personalisation and the cooperative tradition,
with its emphasis on mutual aid and value-led enterprise. First we describe and draw
out key issues from personalisation in the context of local authority provided adult
social care in England, which has been in place in various forms for more than a
decade. Then we introduce personal health budgets, which were announced in
2008 and are currently being piloted (2009 and 2012). We go on to summarise the
co-operative tradition and explore the values and principles underpinning the cooperative movement in the UK. After this we examine co-operatives‟ responses to
personalisation with reference to case studies. In conclusion we discuss the potential
implications and opportunities of personalisation for co-operatives, in particular its
extension from social care to the National Health Service.
Personalised social care
Personalisation has been defined as “putting users at the heart of services, enabling
them to become participants in the design and delivery ....[so that]... services will be
more effective by mobilising millions of people as the co-producers of the public
goods they value”
(Leadbetter, 2004: 19) cited in Newman et al (2008).
Personalisation is not a political fad but a set of principles for reform espoused by
the previous New Labour government and the recently formed Coalition (Dickinson
and Glasby, 2010). The promises of personalisation are for choice, control, and
solutions tailored for individuals, taking account of their strengths, preferences and
networks of support and resources (Carr, 2008). Its origins were in the struggle of
physically disabled people for control over the support they needed to live
independently (Office for Disability Issues, 2008; Glendenning et al, 2008).
Personalisation has been described as a philosophy underpinned by notions of a
shift in the balance of power, responsibility and resources from state agencies to
individuals (Glasby and Dickinson, 2010). Service users are not mere beneficiaries
but the commissioners of their own care, selecting and buying what they decide will
best meet their particular needs (Bartlett, 2009). More radically, they become active
participants in the construction, production and management of their own services.
Another way of talking about this reform is the “transformation of citizens into both
managers and entrepreneurs” (Scourfield, 2007: 112). Personalisation is enabled by,
and usually associated with a set of mechanisms employed to try and bring it about
(ibid). These mechanisms in England have involved the transfer of financial
resources to individuals in place of the provision of services:
Direct Payments (DPs) are cash payments made in lieu of social service
provisions, to individuals who have been assessed as needing support.
Pressure groups for the rights of people with physical impairments lobbied
vociferously for direct payments (Shakespeare 2000). They were introduced
for adults between the ages of 18 and 65 under the Community Care (Direct
Payments) Act 1996 and subsequently amended in 2000 to include older
people.
Personal budgets were introduced originally for learning disability service
users to control their social care budgets. They were spearheaded by In
Control, a national social enterprise set up in 2003 by the Department of
Health, several local authorities and Mencap (a national charity). In 2005 they
were extended to other groups including older people.
Individual budgets were introduced in 2006 initially in thirteen Department of
Health pilots. These can be used to purchase local authority or private
services. Individual budgets differ from personal budgets in that they are
intended bring together all the various funding available to the individual
including for example housing benefits and support for employability.
By March 2011, all local authorities in England are required to have moved
at least 30 per cent of people who use publicly funded adult social care onto
personal budgets.
The most popular option under personal budgets has been direct employment
of personal assistants. It is also possible to receive personal budgets through
a managed account, held by a provider, allowing people to direct their own
care without having to actually manage it. This has proved popular with older
people.
The Welfare Reform Act 2009 gives individuals the right to be told the
monetary value of certain support they are eligible to receive, and is intended
to deliver choice and control over how those resources are used
Personalisation in the form of these models of self-directed support has been
evaluated by academic research teams commissioned by the Departments of Health
and In Control, as well as by think tanks Demos and the Kings Fund. Overall,
evaluations have found that while uptake has been slow and indeed still is,
especially among older people, those who do use personalised services consistently
report satisfaction and improved experiences of care. Benefits to individuals include
improved quality of life, increased control and independence, greater continuity of
care, and fewer unmet needs (Glendenning, 2008). Older people, however, were
an exception and reported lower psychological well-being (ibid.) Effective use of
public money by avoiding waste in providing services people don‟t value is also
recorded as a significant achievement (Hutton and Waters, 2008). It has been
countered that evaluations based on personalisation pilots have tended to
exaggerate gains because participants were selected for being unhappy with their
existing services (Bartlett, 2009). A survey of potential, rather than actual, adopters
of personalized services concluded that too much emphasis is placed on the
changes that people will make, especially older people (ibid. 2009).
Some research based commentary argues that enthusiasm for the benefits of
personalisation should be tempered by a number of concerns beyond the rates of
take up, for example, that the most disadvantaged are least able to exercise choice
(Ali, 2009) Moreover, with the focus of personalisation upon the wishes of those
individuals who do exercise choice, there is a danger that collective service provision
will be undermined. Manthorpe et al. (2009) warn that people using services could
become isolated and that the power of the collective voice on commissioning,
shaping, developing and regulating services might be lost.
The direct payments user has been described as a strange hybrid construction being
a „citizen-as-consumer-as-service-user-as-employer‟ (Scourfield, 2005; 481). There
is the potential for exploitation in the employer – employee relationship and the
employee is isolated from opportunities for training, improved status and negotiation
of working conditions. Tom Shakespeare, a high profile campaigner for disability
rights, acknowledgesthat, while direct payments were important for the
independence and empowerment of disabled people who need support, there are
serious dangers for carers in „an unreflexive reliance on a servant/employer solution‟
(Shakespeare, 2000:63). Not all service users are willing or able to take on the role
of employer. This can be seen as a business opportunity for intermediaries
interested holding budgets for people who don‟t want to manage them, and acting
as brokers to design person-centred plans for people (Bartlett, 2009). Overcoming
the sense of powerlessness without taking on employment responsibilities would
involve moving beyond market-based solutions of personalization theory according
to Fergusson (2007) who argues for the development and strengthening of collective
organisation both amongst those who use services and amongst those who provide
them.
Personalisation is premised on the devolution of power to individual service users
exercised through a competitive market (Carr, 2008). It is intended to lead to
changes in demand for existing services, provide a stimulus to revise the way
services are organized and indeed potentially bring about transformation in the
market. According to the Department of Health there are new opportunities for
innovative providers from any sector to offer the diversity of choice required by
personalisation. Local markets in many areas, particularly rural areas, however,
provide only limited choice (Carr 2008). Genuine choice and control will not be
improved in the absence accessible, diverse and affordable service options
(Glendenning 2008). To deliver on the promises of personalisation, there is a need
for a much enhanced supply side “made up of large, small, private, not for profit,
and public providers competing fairly with each other” (Bartlett, 2009: 8). The risk of
a provider market failing to meet users‟ expectations and a lack of Personal
Assistants could lead to frustration and disappointment, or even fraud and abuse
(Manthorpe et al. 2009). The evidence is that the provider market for personal care
is as yet undeveloped. It is unclear which types of organisations will wish or be able
to seize opportunities to supply the market.
Some commentators have challenged the individualism at the heart of
personalisation. It has been described as „neoliberal recipe of empowerment as
consumers individually spending public money‟ (Burton and Kagan, 2006) and that
risk is transferred to individuals who may find the burden too much and lack access
to good information about the provider or quality of service (Newman et al, 2008).
Burton and Kagan (2006) argue that “the perfectly sound idea that arrangements
should be built around the person, rather than the person fitted into services, is
elevated into a kind of strategy for service reform” and suggest that there needs to
be an integrated approach to social policy that has at its core the building of local
communities and their local economies, with democratic governance and a focus on
culture rather than consumption.
Overall the evaluations and commentary of personalisation of social care highlight
concerns and tensions around: choice and control for service users; the lack of
accessible and affordable providers; employee working conditions; quality issues;
and the direction towards individual consumer models which can be seen as
potentially depleting collective wellbeing. Multi-stakeholder co-operatives have been
proposed as one way of addressing these issues (Scourfield, 2005).
Personal health budgets
Personalisation in health as in social care aims to give people increased control over
the services they use by putting them at the centre of the decision-making process.
This is in line with patient choice being one of the main driving forces in English
health policy. The King‟s Fund (2009) maintains that there are ambiguities about how
they will work and states “They are modelled on individual budgets and direct
payments in social care, but unlike social care, the NHS is a universal system.”
Further they highlight concern over a possible increase in inequities in health (it is
expected that there will be higher take up from younger people and differences in
quality of services)
A pilot programme for personal health budgets was launched last year in a
government review of the future of the National Health Service (Darzi, 2008). Initially
PHBs are aimed at patients who have long-term health issues and not for acute
services. Indeed in his report Darzi (2008) states, “Personal health budgets are likely
to work for patients with fairly stable and predictable conditions, well placed to make
informed choices about their treatment; for example, some of those in receipt of
continuing care or with long-term conditions”(p 42). However end of life care and
maternity services are included.
There are six key principles of PHBs as outlined in High Quality Care for All (Darzi,
2008). These are: upholding the values of the National Health Service; quality of
care is central to the process; tackling inequalities and protecting equality; PHBs are
voluntary; decision making to be as close to the individual as possible and;
partnership and co-production are fundamental.
In 2010 the Department of Heath identified seventy pilot sites in England and these
are now underway and will run until 2012. The national evaluation will mainly focus
on twenty of the pilots who will be studied in-depth and there will also wider research
exploring the potential role of personal health budgets for a number of client groups
and service provision, including maternity and end of life care provision. In addition
there will be local evaluation. The twenty pilots to be evaluated in-depth were
selected based on their larger target numbers and inclusion of clients with
disabilities.
PHBs are not means tested and there is no link to unemployment or other
government funded benefits. There will be three different categories of PHBs.
Notional personal budgets where patients are aware of the treatment options and
financial implications of their choice within a limited budget. No direct payments are
made and the Primary Care Trust is responsible for the contract and service coordination. The second category is real budgets. These involve an amount of money
being identified that is held by a third party who could be the General Practitioner on
behalf of the patient. The third party can support the patient with choice of services.
Finally there are direct payments, and the patient will have a cash amount to
purchase and manage healthcare services. Previously handing money directly to
patients for healthcare has been illegal. However the Health Act 2009 authorised the
twenty in-depth pilots to establish direct payments to clients while the other pilots can
apply to the Secretary of State for the approval to do the same. Until an application is
approved they will have to make payments through a third party or notional
payments.
PHBs are about more than giving people money to purchase the support they need
and requires a seismic organisation shift in culture and systems and increase in
flexibility. They have the potential to shift the focus from process or treatment to
outcome. Information available on the progress of the pilots is limited and has been
difficult to obtain for this paper. Self directed models following principles of
personalisation are novel in health and perhaps more of a challenge in the National
Health Service given the principal of free service at the point of use. The potential for
the market is as yet unknown and as in social care there may be new opportunities
for various kinds of provider models, for example, large national corporations, micro
community enterprises, and co-operatives. It is to the co-operative tradition that we
now turn.
The co-operative tradition
The United Kingdom‟s co-operative movement is a membership based movement
with two centuries of experience in bringing people together to work towards both
social and economic empowerment. The first successful modern type of co-operative
was set up in Rochdale in 1844 when a group of 28 artisans in the town of Rochdale,
in the north of England established the first modern co-operative business, the
Rochdale Equitable Pioneers Society. The weavers faced harsh working conditions
and low wages, and they could not afford the high prices of food and household
goods. They decided that by pooling their scarce resources and working together
they could access basic goods at a lower price (Birchall, 1994; ICA 2005). The
model was widely copied, with many adopting the Pioneers' values and principles
which have since become the basis for co-operatives globally (Birchall, 1997).
In England, consumer co-operatives grew rapidly and provided not just economic
democracy and a financial dividend but a range of educational and social
opportunities for their members. Co-operatives have provided an effective and
ethical alternative to conventional business models since then. Whilst consumer
co-operatives, most notably The Co-operative Group, are the most high profile in the
UK, the flexibility of the co-operative model has resulted in its application across
many different sectors of the economy. These include housing, health and social
care, financial services, childcare, leisure, agriculture and manufacturing for
instance. Recently, community ownership of enterprises such as local shops and
renewable energy projects, using the co-operative model, has grown as its ability to
embed community participation and control has been increasingly recognised.
A thriving co-operative economy already exists in the UK. There are 4,800
co-operative businesses, owned by 11 million people - one in five of the population and sustaining more than 200,000 jobs. Employee ownership has demonstrated its
economic worth in the UK too: the share prices of public companies that are more
than 10% owned by employees outperform the market as a whole by on average
10% per annum (Field Fisher Waterhouse, 2009).
Since the early 1990s the co-operative model has been adapted for the public
sector, for instance the Trust model as applied to hospitals and schools. In some
cases these adaptations were responses to the Thatcher government‟s privatisation
programme and the opening up of public services to competition. Traditional Cooperatives and mutuals operated for the public good by enabling people to have
access to goods and services that were not provided by the market or by the state
(Mills and Griffiths 2009). Their self-help business model struggled to survive in the
latter part of the 20th Century, but they have recently come back into public
awareness as confidence in both state and investor ownership has declined (ibid.)
A range of health and social care co-operatives already exist – some owned and run
by their employees but others involving a range of people including services users,
carers and the local community, known as the multi stakeholder model. At least forty
co-operatives have been identified as actively delivering health and social care
services across England. Service provision mainly centred within the home care
sector, General Practitioner and Primary Health care, foster care and nursing
services. Internationally the use of the co-operative model in health and social care
sectors is well established (Girard, 2002; Health Victoria, 2009)
The way that co-operatives do business is driven by a set of values and principles.
These are set at an international level and overseen by the International
Co-operative Alliance. Defined within the Statement on the Co-operative Identity, the
values are: “…self-help, self-responsibility, democracy, equality, equity and
solidarity. In the tradition of their founders, co-operative members believe in the
ethical values of honesty, openness, social responsibility and caring for others.” A
number of principles guide how these values are put into practice. For instance the
first principle, „Voluntary and Open Membership‟, states: “Co-operatives are
voluntary organisations, open to all persons able to use their services and willing to
accept the responsibilities of membership, without gender, social, racial, political or
religious discrimination.” (ICA, 1995)
Case studies
Sunshine Care in Rochdale, England, is a workers‟ co-operative, developed by a
group of home care workers previously employed by the local authority. Established
in 2008, the organisation was one of the Direct Payment pilot projects and a pilot of
the „Self-Managed Care – a co-operative approach‟ programme. The initial founders
were concerned about the potential impact of personalisation on their clients (care
provision by the private sector) and their own pay and working conditions. They
wanted to be able to influence the care they provided and enable employees to
shape the organisation they worked for. One of the founders had a wealth of
experience as a community activist and was confident of what support she and her
colleagues could access. Networking skills (gained though a lifetime of community
activism) were an important resource for Sunshine Care. They are now registered
with the Care Quality Commission, a regulatory body, have five customers and
employ two personal assistants.
However the establishment of the co-operative has taken a long time. A director
states ”it has been a challenging and hard struggle throughout, everything including
setting up the company has been difficult”. Local councillors have supported the
organisation but with a political change in the councillor responsible for Social Care
this relationship is uncertain. Sunshine Care received a grant from the local
authority (though this process was prolonged) that enabled the organisation to set up
an office and they have received some support from business start up organisations.
It is evident that the mainstream business support organisations can struggle with
supporting co-operatives as they do not fit the standard company limited by
guarantee model. Currently Sunshine Care is facing new challenges. The local
authority is behind with Direct Payments and there are no forms available for
potential customers to apply for a payment. Social Care department staff have
changed again and Sunshine Care have lost their departmental contacts.
Their major challenge now is to recruit customers and employees. A key constraint is
the local authority‟s provider lists. Sunshine Care is not a „preferred‟ provider for
Rochdale or other local authorities thereby reducing their potential customer base
and at odds with the promises of personalisation and the choice agenda. The
organisation is unique in the local authority and this is cited as an issue. If there were
other co-operatives then care assistants could be shared to cover staff absence.
Efficiency vs empowerment
The local authority has an e-monitoring system for all care workers designed to
provide an efficient management process. The worker has to phone a number on
arrival to register their arrival and to ensure that the care job is logged on a system.
According to Sunshine Care this is an impersonal process at odds with their values
of empowering the customer through signing for their own care.
A director considers that the co-operative basis of the organisation is of particular
importance to the employees and of resonance for older people in the area where
there is a strong tradition of the co-operative movement. This may become a key
marketing focus for customers but may not be a priority for the local authority,
bringing us to the crucial point of who is the customer in social care provision?
Caring Support, in Croydon, England is a multi stakeholder co-operative established
by service users and carers, both paid and unpaid. Like Sunshine Care the
organisation was one of the Direct Payment pilot projects and a pilot of the „SelfManaged Care – a co-operative approach‟ programme. It is registered with a
regulatory body and has begun trading with customers who have direct payments
and self-funders. The majority of board members are service users and the
organisation uses a cluster-based operational model. Care is provided by personal
assistants for a group of service users in a geographical location. According to the
founders the organisation provides a high quality service that is underpinned by
employees and service users having an influence over the provision and feeling
empowered and involved. All employees are trained by the organisation and the
ethos and values of co-operatives are central. Advantages of the cluster model
include a reduction in travel expenses and time for carers, development of a longer
term relationship between user and carer and flexibility to cover holidays and
sickness.
Conclusions and discussion
The implementation of personalisation in social care is incomplete. Its extension to
the National Health Service is at pilot stage and to date there is no evaluation of the
pilots. This paper has explored the personalisation mainly from the experience and
analysis of adult social care in which individuals take control of financial support
received from the state. We have considered lessons that have been learned from
evaluation and research, for example the need to develop a provider market. We
have also noted from this literature issues that are uncertain and sometimes highly
controversial. Particularly contested are the status and working conditions of
employees, and fears that individual empowerment through consumer models risks
depleting possibilities for collective action and democratic accountability (Burton
and Kagan, 2006; Newman et al., 2008). Against this background, providers defined
by co-operative values and principles, seem well placed to begin to resolve such
tensions through developing collective approaches and developing new services.
Some case study evidence has demonstrated that co-operatives already operational
in the area of social care are providing a collective and community based service.
The central tenets of personalisation, choice, empowerment and involvement, are
firmly rooted in the origins of the case studies and inform their operation and values.
Employees benefit from being able to influence the organisation and there are
opportunities for working in innovative and new ways. Customers / users who are
members can shape the service provided according to their needs. The co-operative
workers in the case studies have extensive contacts and excellent networking skills.
Networking to mobilise resources for a venture with an uncertain future has been
identified a fundamental part of entrepreneurial behaviour in studies of
entrepreneurship and small business (Dubini and Aldrich 1991; Chell and Baines
2000). For some worker co-operatives, skills gained through community activism
could have important implications for the success of their enterprises.
However there are challenges and constraints for embryonic and existing health and
social care co-operatives. Business support is seen as limited to standard models
that do not fit with co-operatives and funding for support is difficult to obtain. Despite
the rhetoric of central and local government documentation it appears that the reality
for providers and service users is different. There is evidence that delays in making
direct payments to recipients by local authorities result in uncertainties in salary
payments and other commitments for small organisations. This is a typical cash flow
issue for all small businesses, but exacerbated by the individualised nature of the
personalised budgets and direct payments.
There is potential within social care and health for different kinds of co-operative and
mutual enterprise, including employee and worker owned co-operatives, and new
enterprises in which service recipients retain individual control over their care but
share organisational burdens. Personalised care and health imply revising how
people and communities work together in ways that are both welcomed and feared
and integration of the health and social aspects. Lessons from co-operatives
operating within the social care sector will prove valuable for engaging with personal
health budgets but while it is too early to confidently assess the opportunities that
these will offer to new enterprises, it is likely that change will be gradual.
Cooperatives are likely to be among many kinds of enterprise capable of offering a
way forward and given current political landscape in England are ideally placed to
seize the opportunities personalisation offers.
Contact:
Jenny Fisher
Senior Lecturer
Manchester Metropolitan University
j.fisher@mmu.ac.uk
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