Introduction: The message of palliative care can be promoted using creative thinking and gamification. It can be an innovative strategy to promote changes in behaviour, promote thinking, and work on skills such as empathy. Aim: Design,... more
Introduction: The message of palliative care can be promoted using creative thinking and gamification. It can be an innovative strategy to promote changes in behaviour, promote thinking, and work on skills such as empathy. Aim: Design, test and evaluate a gamified social intervention to enhance palliative care awareness. Methods: Participatory action research study with mixed methods, Design Thinking and using the Public Engagement strategy. Forty-three undergraduate students participated in a Palliative CareStay Room and completed the Test of Cognitive and Affective Empathy (TECA) before and after the game. At the end of the game, a ten-minute debriefing was held with the participants and an open-ended questionnaire was handed out. The content analysis was done independently and the sum of the scores of each dimension was compared before and after the activity. Findings: Older participants (N=43: female=23; male=20; x̄ 19.6 years old) presented higher values in perspective adoption...
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BACKGROUND Pedagogical strategies in palliative care are diverse and mainly aimed to understand patients with advanced disease and improving their care. Phenomenological texts are stories intended to evoke lived experiences and help... more
BACKGROUND Pedagogical strategies in palliative care are diverse and mainly aimed to understand patients with advanced disease and improving their care. Phenomenological texts are stories intended to evoke lived experiences and help understand complex situations. AIM To determine what thoughts, experiences and feelings nursing students have when reading a phenomenological text about the experience of a person living with advanced cancer. DESIGN AND METHOD A descriptive qualitative study with palliative care students of the nursing degree at two university centres. The students reflected on a phenomenological text. A thematic analysis of the 14 reflections was performed. The reflections were analysed inductively and independently, and periodic sessions were held to discuss the identified categories and topics. RESULTS The students' writings showed that reading the phenomenological text caused them to reflect and feel moved and challenged. The impact on the students is grouped into three categories: the experience of the corporeality of patients with advanced disease makes students aware of the importance of the body; the disease as an individual transformative process challenges students; and the experiences of people with advanced cancer make students aware of the importance of how they care for patients and their families. CONCLUSION The reading of a phenomenological text on the experience of living with advanced cancer may be a teaching method that can generate experiences that promote reflective and experiential learning in nursing students. It seems to be a useful tool for teaching in subjects focusing on person-centred care.
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The way of being of nurses and their way of meeting the PATC is central when caring for them. Therefore professionals must be sensitive and conscious of the importance of the way in which they relate with these patients. It is essential... more
The way of being of nurses and their way of meeting the PATC is central when caring for them. Therefore professionals must be sensitive and conscious of the importance of the way in which they relate with these patients. It is essential to foster among nurses attitudes that lead to care patients as holistic persons with affection and closeness. Contact details: meibarrondo@unav.es Presenting author
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Literature suggests that it is possible to live well with advanced cancer but little is known about the process. In this article, we present a secondary analysis of experiences of living with advanced cancer ( n = 22) that refines the... more
Literature suggests that it is possible to live well with advanced cancer but little is known about the process. In this article, we present a secondary analysis of experiences of living with advanced cancer ( n = 22) that refines the theory of “Living Well with Chronic Illness” for a different context and population. The refined theory explains the experience of living well with advanced cancer illuminating a five-phase iterative process: struggling, accepting, living with advanced cancer, sharing the illness experience, and reconstructing life. These five phases revolve around the core concept of Awareness of Dying, which varied from awareness of the possibility of dying, to accepting the possibility of dying, to acceptance that “I am dying.” Awareness of Dying led to a focus on living well with advanced cancer and movement towards living a life rather than living an illness.
Research Interests: Palliative Care, Theory, Cancer, Qualitative Health Research, Qualitative Research, and 13 moreHistory of Daily Life, Medicine, End of life care, Qualitative, Europe, End of life, Secondary analysis, Dying, Palliative, Assisted Living, Psychology and Cognitive Sciences, Advanced Cancer, and Medical and Health Sciences
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Research Interests: Assessment, Palliative Care, Personhood, Medicine, Distress, and 15 moreHumans, Dignity, Female, Male, Dignity in Care, Hospital Anxiety and Depression Scale, Aged, Middle Aged, Psychological Tests, Adult, Concurrent Validity, Neoplasms, Discriminant Validity, Elsevier, and Medical and Health Sciences
Research Interests: Psychology and Delirium
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Research Interests: Psychometrics, Palliative Care, Adolescent, Medicine, Translations, and 15 moreHumans, Female, Male, Reliability, Aged, Middle Aged, Questionnaires, Outpatients, Adult, Neoplasms, Reproducibility of Results, Severity of Illness Index, Sickness Impact Profile, Symptom assessment, and Medical and Health Sciences
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The Patient Dignity Inventory (PDI) evaluates sources of distress related to the feeling of loss of dignity and was designed for patients at the end of life. The aim of the present work was to generate a better understanding of the... more
The Patient Dignity Inventory (PDI) evaluates sources of distress related to the feeling of loss of dignity and was designed for patients at the end of life. The aim of the present work was to generate a better understanding of the experiences of healthcare staff when using the PDI. An exploratory qualitative study is presented about the experience of 4 professionals who applied the PDI to 124 advanced-cancer patients. Our study consisted of an analysis of their experiences, taken from information generated in a focus group. A thematic analysis was performed on the information generated at that meeting by two researchers working independently. The initial experiences with the PDI on the part of the professionals led them to systematically administer the questionnaire as part of an interview instead of having patients fill it out themselves in written form. What started out as an evaluation very often led to a profound conversation on the meaning of life, dignity, and other sensitive...
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Dignity therapy is psychotherapy to relieve psychological and existential distress in patients at the end of life. Little is known about its effect. To analyse the outcomes of dignity therapy in patients with advanced life-threatening... more
Dignity therapy is psychotherapy to relieve psychological and existential distress in patients at the end of life. Little is known about its effect. To analyse the outcomes of dignity therapy in patients with advanced life-threatening diseases. Systematic review was conducted. Three authors extracted data of the articles and evaluated quality using Critical Appraisal Skills Programme. Data were synthesized, considering study objectives. PubMed, CINAHL, Cochrane Library and PsycINFO. The years searched were 2002 (year of dignity therapy development) to January 2016. 'Dignity therapy' was used as search term. Studies with patients with advanced life-threatening diseases were included. Of 121 studies, 28 were included. Quality of studies is high. Results were grouped into effectiveness, satisfaction, suitability and feasibility, and adaptability to different diseases and cultures. Two of five randomized control trials applied dignity therapy to patients with high levels of base...
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Introducción La persona con cáncer avanzado experimenta cómo distintas esferas de su persona cambian durante la enfermedad. Estos cambios conllevan consecuencias físicas, psicológicas, emocionales, sociales y espirituales relacionadas con... more
Introducción La persona con cáncer avanzado experimenta cómo distintas esferas de su persona cambian durante la enfermedad. Estos cambios conllevan consecuencias físicas, psicológicas, emocionales, sociales y espirituales relacionadas con el cáncer, la dependencia y el final de la vida. Objetivo Comprender la experiencia de la persona que vive con cáncer en fase avanzada MÉTODO FUENTE LÍMITES Búsqueda computerizada Cuiden Cochrane (*) CINAHL PsycInfo Pubmed -Últimos 10 años -Inglés o español -Sólo adultos * Palabras clave de la estrategia de búsqueda en abstract, título o keywords Búsqueda manual 9 revistas de alto impacto de enfermería en cuidados paliativos Revisión de los años 2012-2013 Búsqueda mediante "snowball" Referencias de artículos incluidos Artículos relacionados en las bases de datos Bibliografía publicada por autores relevantes identificados Materiales y métodos Se llevo a cabo una meta-síntesis cualitativa con el propósito de lograr una rev...
Introduction: Social dignity, that is based on the ontological dignity and which is a consequence of its recognition, it is as a fundamental aspect of the care for both, health professionals and patients. Especially, at the end of life,... more
Introduction: Social dignity, that is based on the ontological dignity and which is a consequence of its recognition, it is as a fundamental aspect of the care for both, health professionals and patients. Especially, at the end of life, period of time spam in which the person is more vulnerable. Objective: to explore different dignity models that have been elaborated in different healthcare contexts. Method: A review of the literature was carried out in CINAHL, Pubmed and PsycINFO databases, introducing ″Dignity Model″ as keyword. The only limit of the search was research written in English or Spanish. Results: seven models of dignity elaborated from different contexts and with different perspectives were identified. All of them consider dignity as an intrinsic aspect of the human being, but at the same time they take into account a subjective dimension of the dignity that depends on the persons' experience. This subjective dimension of dignity is influenced by person's perc...
It is increasingly necessary to have a measuring instrument available in the health field that can be used in clinical practice and research. In order to guarantee the quality of their measurements it is essential that the instruments... more
It is increasingly necessary to have a measuring instrument available in the health field that can be used in clinical practice and research. In order to guarantee the quality of their measurements it is essential that the instruments should be subjected to a process of validation. This process consists in adapting the instrument culturally to the setting where its psychometric characteristics are to be administered and checked, such as: reliability, validity, sensitivity and feasibility. There are measuring instruments from the health field available in other languages but that have not been validated into Spanish. Besides, the methodology for validating an instrument is little understood by the health professionals, which explains the indiscriminate use of instruments that have only been adapted or validated in a way that is not very consistent. The aim of this review is to bring up to date the process of validating an instrument for measuring health, and what it involves, in a pr...
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The Memorial Delirium Assessment Scale (MDAS) is a reliable and validated instrument with which to assess delirium. However, MDAS responsiveness has only been investigated in an indirect way. Also, neurobehavioral and global cognitive... more
The Memorial Delirium Assessment Scale (MDAS) is a reliable and validated instrument with which to assess delirium. However, MDAS responsiveness has only been investigated in an indirect way. Also, neurobehavioral and global cognitive factors seem to be the MDAS main factor loads. The primary objective of this study was to evaluate MDAS responsiveness and analyze individual factors on this scale. The secondary objective was to confirm concurrent validity and reliability of the Spanish version of the MDAS. The translation-back translation method was used to obtain the Spanish version of the MDAS. Delirium diagnosis was determined by the clinical Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition, Text Revision criteria and with the Confusion Assessment Method. Responsiveness and factor loadings were determined with the Delirium Rating Scale-Revised-98, the Mini-Mental State Examination (MMSE), and the MDAS at baseline (0 hours) and at 72 hours. Variation in the scores of the Delirium Rating Scale-Revised-98 shows a correlation of r = 0.93, with variation in MDAS scores at P < 0.001. Variation in MMSE scores shows a correlation of r = -0.84, with variation in MDAS scores at P = 0.015. Factor I, neurobehavioral (reduced awareness, reduced attention, perceptual disturbance, delusions, altered psychomotor activity, and sleep-wake cycle disturbance), correlated moderately with the MMSE at -0.56. Factor II, global cognitive (disorientation, short-term memory impairment, impaired digit span, and disorganized thinking), correlated strongly with the MMSE at -0.81. Factor II was significantly more reliable than Factor I, rho = 0.7, P = 0.01. The high responsiveness confirms the value of the MDAS for ongoing delirium assessment. Two differentiated factor loadings point to a potential future need for MDAS subscales.