Chapter II
REVIEW OF LITERATURE
Human rights are those inalienable rights which transcend
political boundaries, ideologies and faiths. Patient’s rights on the other
hand are a reflection of these rights. It is where the needs of the people
for prompt and just healthcare are met without being constrained by
socio-economic, cultural, physical, emotional status and the like. The
principle of achieving and attaining the fundamental dignity to achieve
equality of all human beings guides the fulfillment of these rights.
The patient’s interest and welfare is the core of the healing
relationship. It is fundamental to medical practice. The Hippocratic
principle which states that the healer shall act to promote the patient’s
interest and well-being and never to do harm are the long-standing
guiding rules of the health care profession. To put this fundamental
credo into the working language of the health professionals, ethical codes
have been articulated over the centuries by differing religious and
cultural traditions. (Dunn, 1994)
Both have at their heart certain understandings of the value of the
human individual and of his or her right to be treated with dignity and
respect. Amnesty International believes that the ethics of the health
professions shall reinforce human rights and make health professionals
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allies in its campaign for the promotion and protection of basic rights
(Dunn, 1994). To achieve this, the medical profession shall have an
understanding of the value of the human individual and knowledge of
their rights for them to be able to treat these patients with utmost
respect and dignity.
The Universal Declaration of Human Rights has been instrumental
in enshrining the notion of patients’ rights in international law. This
provides a legal and moral ground for the improvement of the standards
of care on the basis of the mutual responsibilities of the medical
practitioner and the patient towards each other as members of the
“human family.” This is also important in giving guidance on critical
social, legal and ethical issues. But there remains a great deal of work to
be done to clarify the relationship between human rights and right to
health which includes patients’ rights. The United Nations Commission
on Human Rights (UNHCR) has designated a Special Rapporteur to
provide the organization with reports that examine and clarify the
broader relationship between human rights and right to health in
recognition of this challenge. This report has been of great importance to
the World Health Organization, whose mission is to ensure “health for
all”. Grounding the mission into a fundamental human right which is the
right to health is an important milestone, and a great step forward in
realizing the organization’s goal (Rosenbaum, 1997).
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"Patients have needs, not rights" is a commonly heard response to
increased patient rights. In fact, they have both. "Health" and "life" has
been the primary values expressed by health care professionals.
However, in the wake of rapid development in terms of care and
treatment comes reports and alarm signals from hospitals and nursing
homes bearing witness to violations of the rights of individuals.
Therefore, the need to strengthen and safeguard patient's rights is
greater than ever before. (Medicare Center Rights, 1996)
These violations prompt the emergence of patient rights’
legislation. Patient rights legislation has several important functions. To
the legally inexperienced, it may be difficult to get an overview of one's
rights when it comes to placing demands on the health care system.
Bringing over the legislation makes it easier for both patients and health
care personnel to do the deed. In addition, since rights are aimed among
other things, at promoting equal treatment, they may reduce the scope of
the doctor's discretion, thus, safeguarding the patients’ legal security
(Medicare Center Rights, 1996).
Effective health care requires collaboration between patients and
physicians and other health care professionals. Relationships between
patients and health care professionals are most rewarding and likely to
result in positive outcomes when they are characterized by open
communication, active participation of patients in the treatment process,
respect for personal and professional values, and sensitivity to
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differences. These results to patient participation in treatment which is
very important if health care professionals want compliance. The benefits
of patient participation go beyond just the anticipated therapeutic effect
of the intervention (Czajkowski and Chesney, 1990). Patient participation
in treatment, their compliance also leads to improved satisfaction with
care and better quality of life.
As the primary setting and primary persons for the provision of
health services; hospitals and health care professionals shall provide a
foundation for understanding the rights of patients and their families by
living up with the health care ethics that respects the role of patients and
their significant others in decision-making about treatment choices and
other aspects of their care.
In the Philippines, where health care institutions recognize each
patient as an individual with unique health care needs, authorities
stresses the importance of respecting each patient's personal dignity, and
the provision of considerate care focus upon each patient's individual
needs.
The patients’ rights are first established by the American Hospital
Association (AHA) in 1973 and are revised sometime in October 1992. It
is developed with the expectation that hospitals and health care
institutions will support these rights to be able to deliver effective patient
care. The AHA encourages institutions to translate and/or simplify the
bill of rights to meet the needs of their specific patient populations and to
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make patient rights and responsibilities understandable to patients and
their families (Kozier, 2004).
Patients’ rights are intended to accomplish three major goals. First,
to strengthen patient’s confidence by assuming that the health care
system is fair and responsive to the patient’s needs; to provide patient’s
with credible and effective mechanisms to address their concerns and to
encourage patients to take an active role in improving and assuring their
health. Second, is to reaffirm the importance of a strong relationship
between patients and their health care professionals. Third, is to reaffirm
the critical role patients play in safeguarding their own health by
establishing both rights and responsibilities for all participants in
improving health status.
According to the AHA, a patient's rights can be exercised on his or
her behalf by parents, guardians, family members, other conservators
designated surrogate or proxy decision-maker if the patient lacks
decision-making capacity, is legally incompetent, or is a minor. And
below are the Rights of Patients as published by the AHA and are
honored by both the international health care system and the
Philippines, particularly at Ilocos Training and Regional Medical Center
(ITRMC), City of San Fernando, La Union according to its applicability in
the institution which is the locale of the study.
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Patient’s Rights
Patients have the right to considerate and respectful care.
Patients have the right to considerate, respectful care from all members
of the health care system at all times and under all circumstances
because an environment of mutual respect is essential to maintain a
quality health care system. Patients want to be treated with respect and
they want to be treated fairly.
Respect has been defined as recognizing a "person's capacities and
perspectives, including his or her right to hold certain views, to make
certain choices, and to take certain actions based on personal values and
beliefs" (Faden and Beauchamp, 1986). Conversely, patients defined
respectful treatment as that which takes into consideration the values,
preferences, and expressed needs of the patient. In addition, patients
wanted health care providers to communicate well, to be respectful of the
patient's time, and to give emotional support to alleviate the patient's
fear and anxiety.
In ITRMC, patients are treated fairly regardless of their socio-
economic status. To achieve this, social workers are assigned to have
rounds on every ward to be able to assess the financial capabilities of the
patient. They then categorize the patients on the following criteria. A -can
afford. B- with Health Management Organization (HMO). C1- 25%
discount. C2 - 50% discount. C3- 75% discount. D - indigent for the
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patients to receive equal attention during admission or during
confinement.
Medical cases are prioritized according to who really needs urgent
treatment. Medical management is first given to those who suffer from
conditions that have to do with airway, breathing and circulation (ABC’s).
Other less severe cases after will then receive the same attention.
Patients are greeted and called on by name during administration
of medications or during the signing of consent for therapeutic
management. Their decisions are always sought in every aspect of their
care for them to fully participate with the realization of their plan of care.
Sometimes, patients are also placed on isolation or treated with
utmost precaution for them not to suffer from cross-contamination which
is a big possibility because of the diseases that surround him in the
hospital environment.
Patients have the right to obtain from physicians and other
direct caregivers relevant, current and understandable information
about their diagnosis, treatment and prognosis. Physicians, medical
practitioners and nurses at ITRMC always provide the patient
information regarding the flow of their treatment. Records are updated
every now and then. And for as long as the patient demands to have him
or her information of his or her condition; medical records pertaining to
his or her treatment, prognosis and findings are readily available.
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Patients have the right to know the identity of physicians,
nurses and as well as students and other trainees involved in their
care. Introducing oneself before participating in the patient’s plan of care
or before talking to them is a standard operating procedure (SOP) of the
hospital. Wearing of institutionalized uniforms, identification cards (ID’s),
and nameplates are also observed in such a way that students and
medical professionals alike are recognized as partners in the delivery of
the patient’s health care.
Patients have the right to know the immediate and long -term
financial significance of treatment choices in so far as they are
known. Patients have the right to receive accurate, easily understood
information regarding their health. Value-based purchasing allows
patients to obtain greater value for their health care by seeking higher
quality care at the best price. Patients in ITRMC are being informed of
the corresponding expenses to be incurred in every treatment that they
will avail from the hospital. The importance of the medical procedures
and their alternatives are made known to the patient. If the patient can’t
afford the said treatments, it is only then that referrals are made.
Patients have the right to make decisions about the plan of
care before and during the course of their treatment. Patients are
given the privilege to make choices about their plan of care. To push
through or not to push through with the treatments solely depend on the
patients’ decision. To consider the treatment offered such as in blood
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transfusion (BT) or to resort to other options depends on what the
patient thinks is best for his condition.
Patients have the right to refuse a recommended treatment or
plan of care. A more basic reason for providing patients with information
is an ethical one. Health care professionals have an ethical obligation to
inform patients about how their actions can affect the patient’s life and
health. Medical ethicists ground this obligation the principle of respect
for individual autonomy and individuals’ right to make choices about
how they receive medical care. (Beauchamp and Childress, 1994)
Individual differences or preferences are some factors which affect
the plan of treatment designated to each patient. Some of which are a.
religion – followers of Jehovah’s witnesses do not comply with blood
transfusion as based on their beliefs that blood is dirty. b. tradition-
patients sometimes refuse some recommended treatment due to their
superstitious beliefs. c. socio-economic status- patients sometimes
refuse surgeries because these procedures subject them to expenses that
they cannot afford.
In ITRMC, patients who refuse any recommended treatment or
plan of care such as in administration of medications or in blood
transfusions are obliged to sign on what is known in the hospital as
“blotter” which prevents the institution from being liable to any
consequences brought by the patient’s refusal to avail any recommended
service.
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Patients have the right to be informed of the medical
consequences of their refusal of the treatment or plan of care. There
are some instances where some proposals for treatment are being
refused like refusal for intravenous (IV) infusion or refusal for blood
transfusion (BT), and refusal for care or refusal for admission. In cases
like these, the nurse will let the patient sign just after the doctor’s order
which confirms the patient’s refusal of such. The nurse will then notify
the physician about the refusal thereby prompting the medical
practitioner to explain whatever consequences the situation may lead to.
Patients have the right to make a statement such as a “living
will” which should be followed by the hospital as permitted by law.
In ITRMC, making statements such as living will by the patient is
regarded as a personal matter. The only contribution of the healthcare
professionals is that they subject themselves as witnesses upon request
if guided by legal intents and purposes.
Patients have the right to be advised of their rights under the
hospital policy. Upon admission, the assigned personnel present and
likewise explain the different policies of the institution. Various points
that are raised are the time and the number of hours for visiting,
prohibition of watchers in occupying vacant beds in the ward and
prohibition of smoking within the hospital premises. The staff in
collaboration with non-government organizations like SINAG, and other
caregivers also conducts lectures regarding the hospital rules and
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regulations. The institution also makes it a point to place posters and
guide lists into conspicuous areas informing the patients and watchers
alike of the hospital’s rules and regulations.
Patients have the right to privacy. Facilities such as private
rooms and other equipments are available at the hospital in order for
patients to have privacy. Proper draping during skin preparations or
during obtaining specimens from a patient without bathroom privileges
are observed by nursing students, other trainees and medical
practitioners.
Patients have the right to confidentiality of all records and
communications regarding their care. The assurance that patient's
health information will remain confidential is "fundamental to effective
diagnosis, treatment and healing" (Shalala, 1997).
Patients have the right to communicate with health care providers
in confidence and to have the confidentiality of their individually
identifiable health care information protected. The legal right to
confidentiality of health care information and its essential role in the
delivery of quality health care has been recognized by the Philippine
laws.
Medical records of the patients in ITRMC are kept with strict
confidentiality. Only the doctors, nurses and other medical personnel
are allowed to view and study the charts of patients. Nursing students
are only allowed to open these charts if they’re supervised by both the
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staff nurse and the clinical instructor alike. The quality of the health care
system depends on the regular exchange of information between health
care providers. Watchers or other relatives of the patient can also view
these charts if and only if they are authorized by the patient himself to
do so.
Patients have the right to review all their medical records and
have them explained or interpreted. Obtaining the information and
making it available to patient’s will, by itself, equip patients with the
knowledge and abilities required to act on this information. Patients are
able to evaluate critical information about quality. However, research on
how patients use information to make decisions suggests that too much
information can be overwhelming (Edgman-Levitan and Clery, 1996). The
matter must be presented to them in a manner that they can really
understand.
In ITRMC, only the doctors have the right to interpret every single
detail or finding concerning the patient’s condition. Nurses offer
explanations also but only as support to what the physician has said or
to clarify or explain the importance of some aspects of the patient’s care
that he or she cannot understand.
Patients have the right to receive requested care and services
provided these are reasonable. Patients have the right to a choice of
health care providers that is sufficient to ensure access to appropriate
high-quality health care.
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The granting of any request or service for care is case-to-case
basis. If a patient from a ward requests for him or her to be transferred
in a private room, it can be provided if there are private rooms available.
If one patient request for oxygen inhalation because he or she is having
difficulty of breathing, it can be granted also provided that the service
will not jeopardize the patient’s condition. But if the patient requests to
exchange beds with a fellow patient or insists that the chairs or electric
fans in the ward should only be for his or her sole use, it will not be
granted because these amenities are intended for the use of all. If the
patient requests for the physician to come at his or her aid immediately,
it maybe for the physician to do his wound dressing or re-insert an
intravenous infusion because she doesn’t trust the nursing staff or the
trainee to carry it out, this cannot be granted because the physician has
lot of patient’s to attend to. The request can only be granted if it is
already detrimental to the patient. In cases where a patient or his
relatives request the nursing staff to limit or prohibit student nurses
from carrying out the patient’s plan of care, the nursing staff will then
explain that ITRMC is a training center. But it is however, with the
reassurance that these trainees who will be performing some of the
interventions that are necessary for their care are also equipped with the
knowledge and skills as much as they do. This then gives a go-signal for
the student nurses to do their functions but if and only if under the
supervision of the licensed staff nurse or clinical instructor.
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Patients then need to exercise their rights to choice by using good
judgment and providing direct feedback to evaluate about their level of
satisfaction with the service provided for them.
Patients have the right to ask and be told of the existence of
any business arrangements among the hospital, educational
institutions and/or people involved and that may influence their
treatment and care. Whenever questions are raised about the presence
of student nurses or other trainees during the delivery of the patient’s
care, it is then explained to him or her that the institution serves as
training ground for the students of the educational centers that the
hospital is affiliated with. It is with reassurance; however, that these
trainees can not push through with the delivery or the performance of
the patient’s plan of care unless they are supervised by a licensed
nursing staff or clinical instructor.
Patients have the right to informed consent to any medical
and surgical procedures affecting their plan of care. Before patients
are subjected to any medical or surgical procedure, a consent form
secured by the surgeon, is always presented to them for signing. It is
only when the consent form is signed that the surgeons or the physicians
at that can push through with the procedures.
Patients have the right to refuse to participate in any research
studies or human experimentation. More often than not, research
studies are conducted in the institution. If the research studies dwell
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mostly on letting the patient answer a questionnaire or an interview, it
can be permitted if the patient wants to. But if he or she doesn’t want to
answer any of the sorts, it can also be because the institution respects
the patient’s autonomy. If instances occur in which the patient will be
subjected to any experiment or any extensive study to rule-out his or her
condition, it is still dependent on the patient if he wants or doesn’t want
to push through with the procedure.
Patients have the right to expect a reasonable continuity of
care. The patient’s plan of care does not end at the end of his or her
confinement. To facilitate continuity of care, patients are given
instructions regarding their medications. They are also reminded of their
schedule for their follow-up check-ups. Referrals are also made for these
patients to receive immediate care when his or her condition recurs.
Patients have the right to be informed of available and
realistic care options when hospital care is no longer appropriate. In
cases where the institution lacks resources like machines or equipments
required for extensive procedures that immediately need to be done to
support the patient’s condition, the patient or his relatives are informed
of other options. It may be in the form of transferring the patient to other
institution or letting the hospital to continue performing the procedure
with the resources that it can offer. If the patient agrees, it is then that
referrals are made.
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Patients have the right to be informed of the hospitals policies
and practices that relate to their care, treatment and
responsibilities. When questions are raised regarding the patient’s plan
of care, treatment and responsibilities; the nursing staff and the trainees
explain the hospital policies that best respond to their queries. Other
situations that support this right are also presented on the other rights.
Patients have the right to be informed of the resources that
can be used to resolve disputes, grievances or conflicts. Disputes,
grievances or conflicts are always solved within the hospital premises by
the concerned patient and the person to whom he or she have the
misunderstanding, the concerned staff nurse, and the hospital’s security
services. It is only when the conflict goes beyond the hospital’s
jurisdiction such as in theft, it is only then that the hospital’s right to
solve the matter are waived.
Patients have the right to be informed of hospital charges and
available payment methods. Upon discharge, patients’ charges must be
fully paid. Patients in private rooms are updated everyday on their bills
while partial billing is provided to those patients who are confined in the
wards.
Personal Services Rendered (PSR) is being implemented by the
hospital as one way of extending their personal assistance to patients
who cannot afford to pay their bills. Watchers or relatives of each patient
are allowed to do some utility woks in the hospital and they are being
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paid Php 22.50 per hour. Payments for services rendered are deducted
from their charges. Patients can even trade their goods such as
vegetables, rice and fruits to the Dietary department or products such as
brooms to the Social Welfare Section and these will be deducted also
from their charges.